Neurodevelopmental Risk: A Tool to Enhance Conversations With Families of Infants. (October 2019)

• Record Type: Journal Article
• Authors: Lemmon, Monica E.; Huffstetler, Hanna E.; Donohue, Pamela; Katz, Madelaine; Barks, Mary C.; Schindler, Emma; Brandon, Debra; Boss, Renee D.; Ubel, Peter A.
• Is Part Of: Journal of child neurology. Volume 34:Number 11(2019:Nov.)
• Page Start: 653
• Page End: 659
• Publication Date: 2019-10
• Subjects: question prompt list -- communication -- neonate -- neurology; Nervous system -- Diseases -- Periodicals; 618.928
• DOI: 10.1177/0883073819844927
• Languages: English
• ISSNs: 0883-0738

Abstract

Parents of infants at risk of neurodevelopmental impairment require clear and individualized information about what to expect for their child, yet data suggest they have difficulty knowing how to ask for this information. Here, we pilot a Question Prompt List (QPL) with parents of infants at risk of neurodevelopmental impairment. To assess real-time use of the QPL, we recorded family meetings and collected data from parents and clinicians about the QPL experience. Qualitative data were analyzed using directed content analysis. Ten parents were enrolled. In family meetings, clinicians universally acknowledged the QPL and most used the QPL to guide meeting content. All parents who used the QPL found it useful and would recommend the tool to others. In interviews, parents described that the QPL offered novel questions and facilitated more prepared answers from the team. Future studies should test the impact of this QPL on parent understanding and communication quality.