The TRIO Framework: Conceptual insights into family caregiver involvement and influence throughout cancer treatment decision-making. Issue 11 (November 2017)

• Record Type: Journal Article
• Authors: Laidsaar-Powell, Rebekah; Butow, Phyllis; Charles, Cathy; Gafni, Amiram; Entwistle, Vikki; Epstein, Ronald; Juraskova, Ilona
• Is Part Of: Patient education and counseling. Volume 100:Issue 11(2017)
• Page Start: 2035
• Page End: 2046
• Publication Date: 2017-11
• Subjects: Family caregivers -- Triadic -- Medical decision-making -- Conceptual framework; Patient education -- Periodicals; Health counseling -- Periodicals; Health education -- Periodicals; Counseling -- Periodicals; Patient Education -- Periodicals; Éducation des patients -- Périodiques; Counseling -- Périodiques; Éducation sanitaire -- Périodiques; 615.5071
• DOI: 10.1016/j.pec.2017.05.014
• Languages: English
• ISSNs: 0738-3991

Abstract

Highlights: Empirically-grounded conceptual Framework of DM with a corresponding graphical aid. Focuses on the form and extent of family caregiver involvement in/influence over DM. Presents six conceptual insights derived from empirical evidence and DM theory. May serve as a useful guide for future empirical, ethical and/or theoretical work. Abstract: Objective: Family caregivers are regularly involved in cancer consultations and treatment decision-making (DM). Yet there is limited conceptual description of caregiver influence/involvement in DM. To address this, an empirically-grounded conceptual framework of triadic DM (TRIO Framework) and corresponding graphical aid (TRIO Triangle) were developed. Methods: Jabareen's model for conceptual framework development informed multiple phases of development/validation, incorporation of empirical research and theory, and iterative revisions by an expert advisory group. Results: Findings coalesced into six empirically-grounded conceptual insights: i) Caregiver influence over a decision is variable amongst different groups; ii) Caregiver influence is variable within the one triad over time ; iii) Caregivers are involved in various ways in the wider DM process; iv) DM is not only amongst three, but can occur among wider social networks; v) Many factors may affect the form and extent of caregiver involvement in DM; vi) Caregiver influence over, and involvement in, DM is linked to their everyday involvement in illness care/management. Conclusion: The TRIO Framework/Triangle may serve as a useful guide for future empirical, ethical and/or theoretical work. Practice implications: This Framework can deepen clinicians's and researcher's understanding of the diverse and varying scope of caregiver involvement and influence in DM.