Parental coping with retinoblastoma diagnosis. Issue 3 (4th May 2019)

• Record Type: Journal Article
• Authors: Gelkopf, Maxwell J.; Chang, Trillium E.; Zhang, Yan; Zhang, Chengyue; Yi, Khairi; Fang, Vixey; Mendlowitz, Sandra; Zhao, Junyang; Dimaras, Helen
• Is Part Of: Journal of psychosocial oncology. Volume 37:Issue 3(2019)
• Page Start: 319
• Page End: 334
• Publication Date: 2019-05-04
• Subjects: Retinoblastoma -- parental coping -- HADS -- childhood cancer -- China; Cancer -- Psychological aspects -- Periodicals; Cancer -- Social aspects -- Periodicals; 362.196994
• DOI: 10.1080/07347332.2018.1509165
• Languages: English
• ISSNs: 0734-7332

Abstract

Abstract: Objective: To characterize coping and distress among parents of children with retinoblastoma, and to uncover their association with perceived health literacy, self-efficacy, and social support. Methods: This was a cross-sectional study performed in the retinoblastoma clinics of Beijing Children's Hospital, Jilin Eye Hospital and Changchun Hospital in China. Parents of children with retinoblastoma ( n = 104) completed a print Mandarin language questionnaire consisting of four sections: (i) demographic information, (ii) mini-mental adjustment to cancer scale, (iii) hospital anxiety and depression scale, and (iv) perceived health literacy, self-efficacy, and social support scales. Scores were tabulated for each measure and analyzed by bivariate correlation. Results: Moderate anxiety affected 59.2% of parents, and 77.7% experienced low, moderate, or high levels of depression. Combined anxiety and depression was positively correlated with helplessness/hopelessness ( R = 0.42, p < .01) and anxious preoccupation ( R = 0.247, p < .05), and negatively correlated with perceived self-efficacy ( R = –0.228, p < .05). Perceived social support from a partner was negatively correlated with depression ( R = –0.207, p < .05) and helplessness/hopelessness ( R = –0.271, p < .01). Conclusions: Knowledge of how parents cope with their child's cancer diagnosis can help healthcare teams understand how best to support their psychosocial needs.