Comparing provider and patient views of issues for low‐resourced breast cancer patients. Issue 5 (18th March 2019)

• Record Type: Journal Article
• Authors: Enzler, Cassandra J.; Torres, Shioban; Jabson, Jennifer; Ahlum Hanson, Arin; Bowen, Deborah J.
• Is Part Of: Psycho-oncology. Volume 28:Issue 5(2019)
• Page Start: 1018
• Page End: 1024
• Publication Date: 2019-03-18
• Subjects: comparative interviews -- low‐resourced settings -- patients -- poverty -- providers; Cancer -- Psychological aspects -- Periodicals; Cancer -- Social aspects -- Periodicals; Neoplasms -- psychology -- Periodicals; 616.9940019
• DOI: 10.1002/pon.5035
• Languages: English
• ISSNs: 1057-9249

Abstract

Abstract: Objective: The purpose of this study was to compare provider and patient views from the same clinical settings on issues raised by low‐socioeconomic status (SES) breast cancer survivors. Methods: We conducted qualitative interviews among two groups: low‐SES breast cancer survivors (n = 37) and medical personnel (ie, physicians, nurses, and navigators; n = 8) who interact and serve with these patients from two geographically distinct low‐resourced clinical settings. These semistructured qualitative interviews used grounded theory to identify several potential themes, such as finances, resources, and medical care. Transcripts were coded and summarized into themes. Results: We analyzed each type of interview data separately then compared patient and provider perspectives. From these qualitative interviews, we discovered that low‐SES breast cancer survivors reported many unmet needs, including transportation, housing, health literacy, and language, among others. Providers reported that many of these needs are served by the extensive network of supports surrounding these patients. Conclusions: These results illustrate that low‐SES breast cancer survivors have unique needs that differ from other breast cancer survivors. Many providers feel that these needs are being met, but patients have more diverse experiences. By better addressing the links between resource needs and low‐SES breast cancer survivors, quality of life can be improved.