What is a Medical Information Commons?. Issue 1 (March 2019)

• Record Type: Journal Article
• Authors: Bollinger, Juli M.; Zuk, Peter D.; Majumder, Mary A.; Versalovic, Erika; Villanueva, Angela G.; Hsu, Rebecca L.; McGuire, Amy L.; Cook-Deegan, Robert
• Other Names: Cook-Deegan Robert guest-editor.; Majumder Mary A. guest-editor.; McGuire Amy L. guest-editor.
• Is Part Of: Journal of law, medicine & ethics. Volume 47:Issue 1(2019)
• Page Start: 41
• Page End: 50
• Publication Date: 2019-03
• Subjects: Medical laws and legislation -- United States -- Periodicals; Medical care -- Law and legislation -- United States -- Periodicals; Medical ethics -- Periodicals; Jurisprudence -- Periodicals; Legislation, Medical -- Periodicals; Legislation, Nursing -- Periodicals; Ethics -- Periodicals; Forensic Medicine -- Periodicals; Nursing -- Periodicals; Medicine -- Periodicals; Societies -- Periodicals; Medical care -- Law and legislation; Medical ethics; Medical laws and legislation; United States; Periodicals; 344.73041
• DOI: 10.1177/1073110519840483
• Languages: English
• ISSNs: 1073-1105

Abstract

A 2011 National Academies of Sciences report called for an "Information Commons" and a "Knowledge Network" to revolutionize biomedical research and clinical care. We interviewed 41 expert stakeholders to examine governance, access, data collection, and privacy in the context of a medical information commons. Stakeholders' attitudes about MICs align with the NAS vision of an Information Commons; however, differences of opinion regarding clinical use and access warrant further research to explore policy and technological solutions.