An innovative electronic health record system for rare and complex diseases. Issue 19 (December 2015)

• Record Type: Journal Article
• Authors: Faria-Campos, Alessandra; Hanke, Lucas; Batista, Paulo; Garcia, Vinicius; Campos, Sérgio
• Is Part Of: BMC bioinformatics. Volume 16:Issue 19(2015)
• Page Start: 1
• Page End: 8
• Publication Date: 2015-12
• Subjects: Electronic Health Record -- Laboratory Information Management Systems -- Workflow; Bioinformatics -- Periodicals; Computational biology -- Periodicals; 570.285
• DOI: 10.1186/1471-2105-16-S19-S4
• Languages: English
• ISSNs: 1471-2105

Abstract

Abstract Background There exists a large number of rare and complex diseases that are neglected due to the difficulty in diagnosis and treatment. Being rare, they normally do not justify the costs of developing an especialized Electronic Health Record (EHR) system to assist doctors and patients of these diseases. In this work we propose the use of Computer applications known as Laboratory Information Management Systems (LIMS) to address this issue. Results In this work we describe a fully customizable EHR system that uses a workflow based LIMS with an easy to adapt interface for data collection and retrieval. This system can easily be customized to manage different types of medical data. The customization for a new disease can be done in a few hours with the help of a specialist. Conclusion We have used the proposed system to manage data from patients of three complex diseases: neuromyelitis optica, paracoccidioidomycosis and adrenoleukodistrofy. These diseases have very different symptoms, exams, diagnostics and treatments, but the FluxMED system is able to manage these data in a highly specialized manner without any modifications to its code.