Perceptions of a psychoeducation program for caregivers of persons with dementia at end of life: a qualitative study. (1st February 2019)

• Record Type: Journal Article
• Authors: Durepos, Pamela; Kaasalainen, Sharon; Carroll, Sandra; Papaioannou, Alexandra
• Is Part Of: Aging & mental health. Volume 23:Number 2(2019)
• Page Start: 263
• Page End: 271
• Publication Date: 2019-02-01
• Subjects: Dementia and cognitive disorders -- qualitative methods -- psychosocial interventions -- caregiving; Older people -- Mental health -- Periodicals; Geriatric psychiatry -- Periodicals; Older people -- Psychology -- Periodicals; Aging -- Psychological aspects -- Periodicals; Aged -- psychology -- periodicals; Mental Health -- periodicals; Mental Health Services -- periodicals; Aging -- psychology -- periodicals; Aged, 80 and over -- psychology -- periodicals; 618.97689
• DOI: 10.1080/13607863.2017.1399347
• Languages: English
• ISSNs: 1360-7863

Abstract

ABSTRACT: Objectives: Caregivers (CG) of persons with dementia have described positive and challenging experiences related to caring for a person with a neurological disease. This study explored perceived benefits and challenges of a unique psychoeducation program provided at end of life (EOL) jointly attended by current and bereaved CGs of persons with dementia, residing in a hospital Specialized Care Unit. Method: Semi-structured interviews were held with sixteen participants and analyzed with content analysis. Results: Program benefits were perceived by CGs such as: (i) enhanced emotional well-being, (ii) increased feelings of preparedness for EOL, and (iii) personal growth into role models. Within the organization the program was perceived as promoting relationship-centered care and increasing resources. Challenges such as diverse CG preferences, day-time scheduling and limited involvement of unit staff were perceived as barriers. Conclusions: This program fills a gap in care for CGs at the critical stage of EOL with continuity into bereavement. Implications for practice include: increasing engagement of unit staff for involvement and tailoring of the program, and translation of the program into alternative settings like long-term care. Policies outlining the support needs and resources for CGs through EOL within and outside the hospital are necessary to ensure access and continuity of care.