Health care Professionals' Experiences and Needs When Delivering End-of-Life Care to Children: A Qualitative Study. (9th August 2017)

• Record Type: Journal Article
• Authors: Bergsträsser, Eva; Cignacco, Eva; Luck, Patricia
• Is Part Of: Palliative care. Volume 10(2017)
• Publication Date: 2017-08-09
• Subjects: Pediatric end-of-life care -- perspectives of health care professionals -- professionals' experiences -- professionals' needs; Palliative treatment -- Periodicals; Terminal care -- Periodicals; Palliative Care; Terminal Care; Palliative treatment; Terminal care; Electronic journals; Periodicals; Periodicals; Fulltext; Internet Resources; Periodicals; 616.029
• DOI: 10.1177/1178224217724770
• Languages: English
• ISSNs: 1178-2242

Abstract

Pediatric end-of-life care (EOL care) entails challenging tasks for health care professionals (HCPs). Little is known about HCPs' experiences and needs when providing pediatric EOL care in Switzerland. This study aimed to describe the experiences and needs of HCPs in pediatric EOL care in Switzerland and to develop recommendations for the health ministry. The key aspect in EOL care provision was identified as the capacity to establish a relationship with the dying child and the family. Barriers to this interaction were ethical dilemmas, problems in collaboration with the interprofessional team, and structural problems on the level of organizations. A major need was the expansion of vocational training and support by specialized palliative care teams. We recommend the development of a national concept for the provision of EOL care in children, accompanied by training programs and supported by specialized pediatric palliative care teams located in tertiary children's hospitals.