Caregiver factors related to emergency department utilization for youth with sickle cell disease. Issue 1 (2nd January 2019)

• Record Type: Journal Article
• Authors: Pantaleao, Ashley; DiPlacido, Joanne; Guite, Jessica W.; Zempsky, William T.
• Is Part Of: Children's health care. Volume 48:Issue 1(2019)
• Page Start: 59
• Page End: 74
• Publication Date: 2019-01-02
• Subjects: Children -- Hospital care -- Periodicals; Child health services -- Periodicals; Children -- Preparation for medical care -- Periodicals; 362.19892
• DOI: 10.1080/02739615.2018.1454838
• Languages: English
• ISSNs: 0273-9615

Abstract

ABSTRACT: This study addressed caregivers' stress, adjustment, and mechanisms related to treatment-seeking for children (age 6 to 16) with sickle cell disease (SCD). We hypothesized cues to action (i.e., perceived pain burden) would mediate relationships between psychosocial factors (i.e., stress, adjustment) and emergency department (ED) utilization. Perceived pain burden mediated relationships between stress that caregivers experience (a) communicating about SCD to their child and/or medical providers and (b) providing medical care for their child with ED utilization. Results suggest caregivers of children with SCD could benefit from interventions that enhance stress-management and communication skills with their child and health care providers.