The anticipated and the lived experience of home and in-centre haemodialysis: Is there a disconnect?. (October 2017)

• Record Type: Journal Article
• Authors: Majeed-Ariss, Rabiya; Jayanti, A; Schulz, T; Wearden, A; Mitra, S
• Is Part Of: Journal of health psychology. Volume 22:Number 12(2017)
• Page Start: 1524
• Page End: 1533
• Publication Date: 2017-10
• Subjects: chronic illness -- health education -- inequalities -- kidney -- qualitative methods -- self-efficacy; Clinical health psychology -- Periodicals; 613.019
• DOI: 10.1177/1359105316630135
• Languages: English
• ISSNs: 1359-1053

Abstract

This qualitative study aimed to explore home haemodialysis and in-centre haemodialysis patients' experience, to illuminate barriers and facilitators in the uptake and maintenance of home haemodialysis. Thirty-two semi-structured interviews with patients receiving home haemodialysis or in-centre haemodialysis were analysed using framework analysis. Four themes emerged: 'perceptions of self'; 'impact of haemodialysis on family'; 'perceived advantages and disadvantages of home haemodialysis and in-centre haemodialysis' and 'practical issues and negotiating haemodialysis'. The lived experience of home haemodialysis was in contrast to the lived experience of in-centre haemodialysis and to the anticipated experience of home haemodialysis, highlighting patient factors that contributed to under-usage of home haemodialysis.