The Role of Aging and Disability Resource Centers in Serving Adults Aging with Intellectual Disabilities and Their Families: Findings from Seven States. Issue 1 (2nd January 2016)

• Record Type: Journal Article
• Authors: Coyle, Caitlin E.; Putman, Michelle; Kramer, John; Mutchler, Jan E.
• Is Part Of: Journal of aging & social policy. Volume 28:Issue 1(2016)
• Page Start: 1
• Page End: 14
• Publication Date: 2016-01-02
• Subjects: Community living -- disability -- intellectual disability long-term services and supports -- state policy; Older people -- United States -- Periodicals; Older people -- Government policy -- United States -- Periodicals; Older people -- Periodicals; Older people -- Medical care -- United States -- Periodicals; 362.605
• DOI: 10.1080/08959420.2015.1096142
• Languages: English
• ISSNs: 0895-9420

Abstract

ABSTRACT: For the first time, adults with intellectual and developmental disabilities (I/DD) are living to experience old age. The purpose of this project was to assess the activities of aging and disability resource centers (ADRCs) as they seek to serve older adults with intellectual disabilities and their family caregivers. Data come from 21 in-depth qualitative interviews with ADRC staff in seven states. Results of this qualitative analysis indicate that ADRCs are not focusing explicitly on adults aging with I/DD and their family caregivers, but meeting the needs of this population is a future goal of ADRCs. Challenges related to accessing and providing information and referral services for adults aging with I/DD were described and highlight existing unmet needs of this population. Supporting adults who simultaneously require aging and disability services requires true coordination of aging and disability service systems.