Articulating the strategies for maximising the inclusion of people with dementia in qualitative research studies. (November 2015)

• Record Type: Journal Article
• Authors: Murphy, Kathy; Jordan, Fionnuala; Hunter, Andrew; Cooney, Adeline; Casey, Dympna
• Is Part Of: Dementia. Volume 14:Number 6(2015:Nov.)
• Page Start: 800
• Page End: 824
• Publication Date: 2015-11
• Subjects: dementia -- persons with dementia -- interviews -- qualitative research -- people with dementia -- strategies for inclusion; Psychiatric social work -- Periodicals; Social work with older people -- Periodicals; Dementia -- Periodicals; 362.19683005
• DOI: 10.1177/1471301213512489
• Languages: English
• ISSNs: 1471-3012

Abstract

It is essential to understand the experience of living with dementia from the perspective of the person with dementia so that services can be appropriately constructed. This review paper, drawing on prior work, identifies key strategies for the meaningful inclusion of persons with dementia within qualitative research studies, it examines the articulation of these strategies and shares how these strategies were operationalised within one national research study in Ireland. Strategies within the literature were categorised and then synthesized into a guide consisting of four main areas; gainingCO nsent, maximizingR esponses, T elling the story, andE nding on a high (CORTE). The CORTE guideline was used to as a tool for analysing relevant research reports. CORTE is a synthesized account of grouped strategies that could be used to maximize the meaningful involvement of persons with dementia and can also provide a guide for reporting the strategies used so that researchers can learn from each other.