Patients' and Family Members' Decision-Making and Information Disclosure Preferences in a Single-Center Survey in China: A Pilot Study. (September 2016)

• Record Type: Journal Article
• Authors: Wei, Shanshan; Chen, Fanglin; Chen, Hongyan; Guo, Ying; Hui, David; Yennurajalingam, Sriram; Chisholm, Gary; Liu, En; Liao, Zhongli; Yang, Li; Cheng, Heng; Zhou, Yuanyuan; Guo, Hong; Bruera, Eduardo
• Is Part Of: American journal of hospice & palliative care. Volume 33:Number 8(2016)
• Page Start: 733
• Page End: 741
• Publication Date: 2016-09
• Subjects: decision-making preference -- information disclosure preference -- patients -- family caregivers -- cancer -- questionnaire modification; Hospice care -- Periodicals; Palliative treatment -- Periodicals; 362.175
• DOI: 10.1177/1049909115588302
• Languages: English
• ISSNs: 1049-9091

Abstract

Background: Understanding the medical decision-making and information disclosure preferences is important for care quality. Objectives: To examine the feasibility of using the questionnaires and to identify modifications needed in the following study. Design: Thirty-three pairs of patients with advanced cancers and their caregivers were asked to complete the questionnaires. Results: More than 60% of patients and caregivers had an educational level of middle school and below. The active, passive, or shared decision-making preferences for patients were 33.3%, 39.4%, and 27.3%, respectively. Twenty of 33 patients and 24 of 33 caregivers misunderstood the questions. Conclusions: Low educational levels may be the reason for poor understanding imprecision. It is necessary to use the modification version of the questionnaires in developing countries.