The Contribution of Parent and Family Variables to the Well-Being of Youth With Arthritis. (November 2015)

• Record Type: Journal Article
• Authors: Knafl, Kathleen; Leeman, Jennifer; Havill, Nancy L.; Crandell, Jamie L.; Sandelowski, Margarete
• Is Part Of: Journal of family nursing. Volume 21:Number 4(2015:Nov.)
• Page Start: 579
• Page End: 616
• Publication Date: 2015-11
• Subjects: synthesis research -- family -- child well-being -- juvenile idiopathic arthritis; Family nursing -- Periodicals; Nursing -- Periodicals; 610.73
• DOI: 10.1177/1074840715601475
• Languages: English
• ISSNs: 1074-8407

Abstract

Among developed countries, the reported prevalence of juvenile idiopathic arthritis (JIA) varies from 16 to 150 per 100, 000. Previous reviews have identified risks faced by children with chronic conditions and indicate a relationship between parent/family characteristics and child adaptation. This analysis provides a mixed-methods synthesis of 29 research reports addressing the intersection of family life and JIA. Data were extracted using a structured template, and effect sizes were calculated for reported relationships between variables. Results were coded using a scheme that differentiated types of family factors. Meta-analysis revealed a moderately strong positive relationship between parent and child psychological functioning, and a medium negative relationship between family conflict and child psychosocial well-being, and parental depression and child physical functioning. Thematic analysis of qualitative results identified parenting challenges related to pain management and regimen demands. Results indicate that interventions to enhance parenting competence and family relationships may improve caregiver and patient outcomes.