Comparative Effectiveness Research and Children With Cerebral Palsy: Identifying a Conceptual Framework and Specifying Measures. Issue 1 (2016)

• Record Type: Journal Article
• Authors: Gannotti, Mary E.; Law, Mary; Bailes, Amy F.; O'Neil, Margaret E.; Williams, Uzma; DiRezze, Briano
• Is Part Of: Pediatric physical therapy. Volume 28:Issue 1(2016:Spring)
• Publication Date: 2016
• Subjects: activities of daily living -- adolescent -- Canada -- cerebral palsy -- child/disabled -- comparative effectiveness research -- consumer satisfaction -- Delphi survey -- disability and health -- health care services research -- health services for persons with disabilities -- International Classification of Functioning -- outcomes -- pain -- participation -- pediatric rehabilitation -- physical therapy -- quality of life; Physical therapy for children -- Periodicals; 615.820832
• DOI: 10.1097/PEP.0000000000000203
• Languages: English
• ISSNs: 0898-5669

Abstract

Abstract : Purpose: A step toward advancing research about rehabilitation service associated with positive outcomes for children with cerebral palsy is consensus about a conceptual framework and measures. Methods: A Delphi process was used to establish consensus among clinicians and researchers in North America. Results: Directors of large pediatric rehabilitation centers, clinicians from large hospitals, and researchers with expertise in outcomes participated (N = 18). Andersen's model of health care utilization framed outcomes: consumer satisfaction, activity, participation, quality of life, and pain. Measures agreed upon included Participation and Environment Measure for Children and Youth, Measure of Processes of Care, PEDI-CAT, KIDSCREEN-10, PROMIS Pediatric Pain Interference Scale, Visual Analog Scale for pain intensity, PROMIS Global Health Short Form, Family Environment Scale, Family Support Scale, and functional classification levels for gross motor, manual ability, and communication. Conclusions: Universal forms for documenting service use are needed. Findings inform clinicians and researchers concerned with outcome assessment. Abstract : Using a Delphi process, the authors conclude that universal forms for documenting service use are needed. Findings from this study will inform clinicians and researchers concerned with outcome assessment.