Caregivers' Management of Schooling for Their Children With Fetal Alcohol Spectrum Disorder. (November 2014)

• Record Type: Journal Article
• Authors: Swart, Suretha; Hall, Wendy A.; McKee, William T.; Ford, Laurie
• Is Part Of: Qualitative health research. Volume 24:Number 11(2014:Nov.)
• Page Start: 1540
• Page End: 1552
• Publication Date: 2014-11
• Subjects: caregivers / caregiving -- children, disability -- grounded theory -- parenting -- symbolic interactionism; Health -- Periodicals; Health behavior -- Periodicals; Health -- Research -- Methodology -- Periodicals; Health behavior -- Research -- Methodology -- Periodicals; 610.7205
• DOI: 10.1177/1049732314545497
• Languages: English
• ISSNs: 1049-7323

Abstract

In this article we describe a grounded theory study of how caregivers of school-aged children with fetal alcohol spectrum disorder (FASD) managed their children's schooling. We completed 30 interviews with 17 caregivers residing in a western Canadian province, as well as document analysis and 25 hours of participant observation. We used constant comparative analysis to construct our substantive theory: intertwining to fit in. The core variable is an iterative cycle caregivers used to resolve their main concerns: preventing their children from failing academically and in social interactions and preventing themselves from being regarded as unacceptable parents. To intertwine to fit in, caregivers used two strategies: orchestrating schooling and keeping up appearances. They also regulated their relationships with their children. "Intertwining to fit in" contributes to the literature on attachment and parenting and extends explanations about caregivers' advocacy for their children with FASD. The theory has implications for school personnel and practitioners, as well as researchers.