Experiences of Family Caregivers Making the Transition From Home to the Palliative Care Unit: Weighing the 2 Sides. Issue 5 (October 2015)

• Record Type: Journal Article
• Authors: Kilgour, Kelly N.; Bourbonnais, Frances Fothergill; McPherson, Christine J.
• Is Part Of: Journal of hospice and palliative nursing. Volume 17:Issue 5(2015:Sep./Oct.)
• Publication Date: 2015-10
• Subjects: end-of-life care -- family caregiver -- home -- palliative care unit admission -- transition; Hospice care -- Periodicals; Palliative treatment -- Periodicals; Terminal care -- Periodicals; Nursing -- Philosophy -- Periodicals; Nursing -- Research -- United States -- Periodicals; Hospice nurses -- Training of -- United States -- Periodicals; 616.029
• DOI: 10.1097/NJH.0000000000000178
• Languages: English
• ISSNs: 1522-2179

Abstract

Abstract : The purpose of this phenomenological study was to examine family caregivers' lived experiences of transitioning a patient from home to a palliative care unit. Ten in-depth interviews were analyzed using Colaizzi's approach. An overarching theme and 8 main themes emerged. The findings reflected family caregivers' recent experiences in the home, during the transition, and on the palliative care unit. Both positive and negative experiences were revealed. In the home, participants felt honored to provide care but also encountered difficulties, such as accessing resources. Being on the palliative care unit, the provision of care from knowledgeable health care professionals was a relief. However, participants felt like a "guest" because there was little control over the environment. This study raises awareness for health care professionals and family caregivers regarding the process and challenges of providing end-of-life care to patients over the illness trajectory.