Dementia: The need for attitudinal change. (July 2014)

• Record Type: Journal Article
• Authors: O'Sullivan, Grace; Hocking, Clare; Spence, Deb
• Is Part Of: Dementia. Volume 13:Number 4(2014:Jul.)
• Page Start: 483
• Page End: 497
• Publication Date: 2014-07
• Subjects: action research -- attitudes -- dementia -- prejudice -- stigma; Psychiatric social work -- Periodicals; Social work with older people -- Periodicals; Dementia -- Periodicals; 362.19683005
• DOI: 10.1177/1471301213478241
• Languages: English
• ISSNs: 1471-3012

Abstract

Objective: To undertake a systematic inquiry into the experience of living with dementia in the community. Design: Action research, underpinned by critical hermeneutics, brought together action and reflection, theory and practice to generate knowledge. Data were gathered by interviews and observations in participants' homes, and focus group discussions in community settings. Participants: Eleven people with mild to moderate dementia and their primary caregiver aged 59–84, living in Auckland, New Zealand. Results: The findings reveal a conflict between living positively with dementia, and enduring the negative attitudes that typify the dominant social discourse. The central argument arising from the findings is the significance of personal attitudes. Conclusions: Implications for policy makers, health care providers, and caregivers highlight the need to change the ways in which dementia is perceived. The pursuit of positive attitudes will do much to change social perceptions and enable people with dementia to live with a sense of well-being.