Using blogs to explore the lived‐experience of life after stroke: "A journey of discovery I never wanted to take". (19th October 2017)

• Record Type: Journal Article
• Authors: Thomas, Caroline M.; Allison, Rhoda; Latour, Jos M.
• Is Part Of: Journal of advanced nursing. Volume 74:Number 3(2018)
• Page Start: 579
• Page End: 590
• Publication Date: 2017-10-19
• Subjects: blogs -- life changing -- nursing -- patients -- qualitative research -- stroke -- thematic analysis; Nursing -- Periodicals; 610.7305
• DOI: 10.1111/jan.13457
• Languages: English
• ISSNs: 0309-2402

Abstract

Abstract: Aims: To explore the lived‐experiences of stroke survivors as expressed in blogs and to discover the role the blogs play in the writers' lives. Background: Stroke can be a devastating, life changing event. Previous qualitative studies tend to examine one aspect of life after stroke. As stroke often has multiple effects, it is necessary to look widely at its lived‐experience. New resources which can enable researchers to explore the lived‐experience of stroke are blogs. Design: Phenomenological exploration using an interpretive thematic analysis. Methods: The Internet was searched for stroke survivors' blogs (January–March 2016) using pre‐set criteria, seeking blogs with entries over an extended time (>1 year). Suitable blogs were identified and codes of meaning were identified and developed into categories, subthemes and themes. Findings: Eight blogs were identified for analysis. Of the 40 categories, eight subthemes were assimilated; internal dialogue, emotions, transition, stroke effects, health care, "in the world", relationships, rehabilitation. Two main themes were identified related to perspectives of lived‐experience; Internal relationship with "self" and External relationship with "the world". Participants expressed loss and initially strove to regain their "old" lives, their focus being recovery and independence. Conclusion: Stroke survivors must transition from their previous life to a new and initially unwelcome way of being. Rehabilitation should respect this process and support stroke survivors as they undertake this individual journey.