Family-Centered Care for Children With Cerebral Palsy: Conceptual and Practical Considerations to Advance Care and Practice. (August 2014)

• Record Type: Journal Article
• Authors: King, Gillian; Chiarello, Lisa
• Other Names: Majnemer Annette guest-editor.
• Is Part Of: Journal of child neurology. Volume 29:Number 8(2014:Aug.)
• Page Start: 1046
• Page End: 1054
• Publication Date: 2014-08
• Subjects: family-centered care -- disability -- childhood -- service delivery -- pediatric neurology; Nervous system -- Diseases -- Periodicals; 618.928
• DOI: 10.1177/0883073814533009
• Languages: English
• ISSNs: 0883-0738

Abstract

This article focuses on conceptual and practical considerations in family-centered care for children with cerebral palsy and their families. In the last 5 years, there have been important advances in our understanding of the components of family-centered care, and initial attempts to understand the client change processes at play. Recent research elaborates on family-centered care by delving into aspects of family-provider partnership, and applying family-centered principles to organizational service delivery to bring about organizational cultures of family-centered care. Recent research has also begun to consider mediators of client change, and new practice models have been proposed that embrace family-centered principles and illustrate the "art" of practice. Future research directions are discussed, including explorations of causal relationships between family-centered care principles, elements of caregiving practice, client change processes, and child and family outcomes. The meaning of the recent literature for pediatric neurology practice is considered.