'We are actually, after all, just children': caring societies and South African infantilisation of adults with intellectual disability. Issue 2 (7th February 2018)

• Record Type: Journal Article
• Authors: Capri, Charlotte; Swartz, Leslie
• Is Part Of: Disability & society. Volume 33:Issue 2(2018)
• Page Start: 285
• Page End: 308
• Publication Date: 2018-02-07
• Subjects: Intellectual disability -- infantilisation -- South Africa -- ethics of care -- caring societies; People with disabilities -- Periodicals; People with disabilities -- Social conditions -- Periodicals; Special education -- Periodicals; Rehabilitation -- Periodicals; 362.4
• DOI: 10.1080/09687599.2017.1409102
• Languages: English
• ISSNs: 0968-7599

Abstract

Abstract: This article comments on infantilisation by attending to South African adult intellectual disability (ID) care through an intersubjective ethics of care lens, and shows how such an ethic can shine light on shifting our responses towards ID. Care performance data were gathered from three sources within two South African specialist ID care sites – from 10 adult residents, 16 nurses as spatiotemporal carers, and three wards as ethnographic sites. Deeply embedded and interwoven throughout various care practices is the disabling of adults with intellectual impairment when literally referred to as 'children'. These adult-unmaking processes constitute practices that fall short of Tronto and Kittay's caring societies ethic. Care exchanges generate relational and intersubjective spaces in which people are understood as never meeting full criteria for personhood. Infantilising care dynamics require urgent attention if we wish to change ways in which ID is viewed and responded to in South Africa.