Mental health and well-being among type 1 diabetes caregivers in India: Evidence from the IDREAM study. (December 2017)

• Record Type: Journal Article
• Authors: Capistrant, Benjamin D.; Friedemann-Sánchez, Greta; Novak, Lindsey K.; Zuijdwijk, Caroline; Ogle, Graham D.; Pendsey, Sharad
• Is Part Of: Diabetes research and clinical practice. Volume 134(2017)
• Page Start: 168
• Page End: 177
• Publication Date: 2017-12
• Subjects: Type 1 diabetes -- Depression -- Well-being -- Caregiver; Diabetes -- Periodicals; Diabetes Mellitus -- Periodicals; 616.462
• DOI: 10.1016/j.diabres.2017.10.009
• Languages: English
• ISSNs: 0168-8227

Abstract

Highlights: T1D caregiving burden was associated with poor mental health and well-being in India. Highest caregiving burden was associated with 47% probability of elevated depressive symptoms. Caregivers with highest burden had 40% probability of low well-being. Interventions are different for type of caregiving burden (subjective or objective). Abstract: Aims: Although more than half of the world's children with T1D live in developing countries, still little is known about how caregiving for children with T1D affects the parent/caregivers' health in low- and middle-income country settings. Methods: Caregivers of 178 children with T1D from a specialized diabetes clinic in Maharashtra, India were surveyed. Ordered and standard logistic regression models adjusted for caregiver, household and child characteristics, were fit to estimate the association of caregiving burden (objective caregiving burden and subjective caregiving burden (Zarit Burden Inventory – tertiles)) with caregiver depression (Patient Health Questionnaire [PHQ-9]) and well-being (CDC Unhealthy Days) outcomes. Results: Caregivers with high subjective caregiving burden had a 41% probability of most severe depression category (probability: 0.41, 95% CI: 0.25, 0.57) and an 39% probability of low well-being (probability: 0.39, 95% CI: 0.27, 0.51), compared to caregivers with low subjective burden. Caregivers with high subjective caregiving burden and high objective direct caregiving burden had an adjusted 30% probability of elevated depressive symptoms (PHQ ≥ 10). Conclusions: Among Indian T1D caregivers, high subjective caregiving burden and objective direct caregiving burden were associated with a high risk for caregiver depression and poorer well-being.