Diabetes Self-Management Education Patterns in a US Population-Based Cohort of Youth With Type 1 Diabetes. (January 2014)

• Record Type: Journal Article
• Authors: Jaacks, Lindsay M.; Bell, Ronny A.; Dabelea, Dana; D'Agostino, Ralph B.; Dolan, Lawrence M.; Imperatore, Giuseppina; Klingensmith, Georgeanna; Lawrence, Jean M.; Saydah, Sharon; Yi-Frazier, Joyce; Mayer-Davis, Elizabeth J.
• Other Names: Lawrence Jean M. non-byline-author.; Reynolds Kristi non-byline-author.; Hsu Jin-Wen non-byline-author.; Black Mary Helen non-byline-author.; Holmquist Kim non-byline-author.; Takhar Harpreet S. non-byline-author.; Kershnar Ann K. non-byline-author.; Pettitt David J. non-byline-author.; Dabelea Dana non-byline-author.; Hamman Richard F. non-byline-author.; Testaverde Lisa non-byline-author.; Klingensmith Georgeanna J. non-byline-author.; Rewers Marian J. non-byline-author.; Maahs David non-byline-author.; Wadwa Paul non-byline-author.; Daniels Stephen non-byline-author.; Nadeau Kristen non-byline-author.; Bloch Clifford A. non-byline-author.; Sorrelman Carmelita non-byline-author.; Beartrack Alfreda non-byline-author.; Rodriguez Beatriz L. non-byline-author.; Fujimoto Wilfred non-byline-author.; Curb J. David non-byline-author.; Kennedy Fiona non-byline-author.; Uramoto Greg non-byline-author.; Waxman Sorrell non-byline-author.; Chung Richard non-byline-author.; Waitzfelder Beth non-byline-author.; Hillier Teresa non-byline-author.; Dolan Lawrence M. non-byline-author.; Seid Michael non-byline-author.; Urbina Elaine non-byline-author.; Standiford Debra A. non-byline-author.; Mayer-Davis Elizabeth J. non-byline-author.; Thomas Joan non-byline-author.; Merchant Anwar non-byline-author.; Liese Angela D. non-byline-author.; Moran Robert R. non-byline-author.; Gaillard-McBride Gladys non-byline-author.; Lawler Deborah non-byline-author.; Jackson Malaka non-byline-author.; Bowlby Deborah non-byline-author.; Amrhein James non-byline-author.; Clark Pam non-byline-author.; Parker Mark non-byline-author.; Pihoker Catherine non-byline-author.; Afkarian Maryam non-byline-author.; Badaru Angela non-byline-author.; Gilliam Lisa non-byline-author.; Hirsch Irl non-byline-author.; Liu Lenna L. non-byline-author.; Neff John non-byline-author.; Yi-Frazier Joyce non-byline-author.; Loots Beth non-byline-author.; O'Connor Rebecca non-byline-author.; Kearns Sue non-byline-author.; Klingsheim Mary non-byline-author.; Buscaino Emil non-byline-author.; Cochrane Katherine non-byline-author.; Martinez Onel non-byline-author.; Semana Sharla non-byline-author.; Greenbaum Carla non-byline-author.; Imperatore Giuseppina non-byline-author.; Williams Desmond E. non-byline-author.; Kahn Henry S. non-byline-author.; Moore Bernice non-byline-author.; Edward Gregg W. non-byline-author.; Saydah Sharon H. non-byline-author.; Linder Barbara non-byline-author.; Marcovina Santica M. non-byline-author.; Gaur Vinod P. non-byline-author.; Harting Jessica non-byline-author.; Bell Ronny non-byline-author.; D'Agostino Ralph non-byline-author.; Beech Bettina non-byline-author.; Case Douglas non-byline-author.; Divers Jasmin non-byline-author.; Morgan Timothy non-byline-author.; Naughton Michelle non-byline-author.; Henkin Leora non-byline-author.; Moxley Susan non-byline-author.; Hargis Gena non-byline-author.; Kronner Donna non-byline-author.; Goldstein Maureen T. non-byline-author.; Anderson Andrea non-byline-author.; Andrews Jeanette non-byline-author.; Lauer Abigail non-byline-author.; Talton Jennifer non-byline-author.;
• Is Part Of: Diabetes educator. Volume 40:Number 1(2014:Jan./Feb.)
• Page Start: 29
• Page End: 39
• Publication Date: 2014-01
• Subjects: Diabetes -- Study and teaching -- Periodicals; 616.462005
• DOI: 10.1177/0145721713512156
• Languages: English
• ISSNs: 0145-7217

Abstract

Purpose: The purpose of this study is to describe (1) the receipt of diabetes self-management education (DSME) in a large, diverse cohort of US youth with type 1 diabetes (T1DM), (2) the segregation of self-reported DSME variables into domains, and (3) the demographic and clinical characteristics of youth who receive DSME. Methods: Data are from the US population-based cohort SEARCH for Diabetes in Youth. A cross-sectional analysis was employed using data from 1273 youth <20 years of age at the time of diagnosis of T1DM. Clusters of 19 self-reported DSME variables were derived using factor analysis, and their associations with demographic and clinical characteristics were evaluated using polytomous logistic regression. Results: Nearly all participants reported receiving DSME content consistent with "survival skills" (eg, target blood glucose and what to do for low or high blood glucose), yet gaps in continuing education were identified (eg, fewer than half of the participants reported receiving specific medical nutrition therapy recommendations). Five DSME clusters were explored: receipt of specific MNT recommendations, receipt of diabetes information resources, receipt of clinic visit information, receipt of specific diabetes information, and met with educator or nutritionist. Factor scores were significantly associated with demographic and clinical characteristics, including race/ethnicity, socioeconomic status, and diabetes self-management practices. Conclusions: Health care providers should work together to address reported gaps in DSME to improve patient care.