Activity of the Alpha-1 Antitrypsin Deficiency Registry in Belgium. (14th May 2015)

• Record Type: Journal Article
• Authors: Hutsebaut, Jacques; Janssens, Wim; Louis, Renaud; Willersinn, Frank; Stephenne, Xavier; Sokal, Etienne; Derom, Eric
• Is Part Of: COPD. Volume 12:Supplement1(2015:Feb.)
• Page Start: 10
• Page End: 14
• Publication Date: 2015-05-14
• Subjects: alpha-1 antitrypsin deficiency -- COPD -- registry; Lungs -- Diseases, Obstructive -- Periodicals; 616.24
• DOI: 10.3109/15412555.2015.1021916
• Languages: English
• ISSNs: 1541-2555

Abstract

Abstract: A Belgian alpha-1-antitrypsin (AAT) deficiency registry has been established in 2003. Currently 55 patients are included. At the same time, a working group has been set up for publishing national guidelines. In 2014, several Belgian patients founded Alpha-1 Global. We hope that the integrated activities of all the stakeholders involved in AAT deficiency will permit a high quality care for all patients suffering from this disabling disease.