Defining the Scope of Public Engagement: Examining the "Right Not to Know" in Public Health Genomics. (28th April 2014)

• Record Type: Journal Article
• Authors: Allen, Clarissa; Sénécal, Karine; Avard, Denise
• Is Part Of: Journal of law, medicine & ethics. Volume 42(2014)Supplement 1
• Page Start: 11
• Page End: 18
• Publication Date: 2014-04-28
• Subjects: Medical laws and legislation -- United States -- Periodicals; Medical care -- Law and legislation -- United States -- Periodicals; Medical ethics -- Periodicals; Jurisprudence -- Periodicals; Legislation, Medical -- Periodicals; Legislation, Nursing -- Periodicals; Ethics -- Periodicals; Forensic Medicine -- Periodicals; Nursing -- Periodicals; Medicine -- Periodicals; Societies -- Periodicals; Medical care -- Law and legislation; Medical ethics; Medical laws and legislation; United States; Periodicals; 344.73041
• DOI: 10.1111/jlme.12114
• Languages: English
• ISSNs: 1073-1105

Abstract

Abstract : In this article, we explore the concept of a "right not to know" on a population rather than individual level. We argue that a population level "right not to know" is a useful concept for helping to define the appropriate boundaries of public engagement initiatives in the emerging public health genomics context.