ACTIVLIM-CP a new Rasch-built measure of global activity performance for children with cerebral palsy. (January 2017)

• Record Type: Journal Article
• Authors: Bleyenheuft, Yannick; Paradis, Julie; Renders, Anne; Thonnard, Jean-Louis; Arnould, Carlyne
• Is Part Of: Research in developmental disabilities. Volume 60(2017:Jan.)
• Page Start: 285
• Page End: 294
• Publication Date: 2017-01
• Subjects: Cerebral palsy -- Activity -- Upper extremity -- Lower extremity + Rasch-model (outside Mesh); CP cerebral palsy -- LE lower extremity -- UE upper extremity -- MACS manual ability classification system -- GMFCS gross motor function classification system -- PEDI pediatric evaluation of disability inventory; Developmental disabilities -- Periodicals; Developmentally disabled -- Research -- United States -- Periodicals; Developmentally disabled children -- Education -- Research -- United States -- Periodicals; Developmental Disabilities -- Periodicals; Disabled -- Periodicals; Mental Retardation -- rehabilitation -- Periodicals; Personnes atteintes de troubles du développement -- Recherche -- États-Unis -- Périodiques; Enfants atteints de troubles du développement -- Éducation -- Recherche -- États-Unis -- Périodiques; Développement, Troubles du -- Recherche -- États-Unis -- Périodiques; 616.858800
• DOI: 10.1016/j.ridd.2016.10.005
• Languages: English
• ISSNs: 0891-4222

Abstract

Highlights: ACTIVLIM-CP, a unidimensional scale measuring global activity performance in children with CP. A reliable tool to document changes in upper and lower extremities. Allowing a follow-up from 2 to 18 years old. Validated for all clinical forms of CP. Abstract: Objective: Children with cerebral palsy (CP) often have upper extremity (UE) and lower extremity (LE) impairments. While tools measuring separately UE and LE abilities are currently used, activities in which UE and LE are used in combination – numerous in everyday life – cannot be assessed because no instrument allows capturing global activity performance in children with CP. This study aimed to develop a clinical tool for measuring their global activity performance using the Rasch model. Study design: The caregivers of 226 children with CP (2–18 years old) answered a 154-item experimental questionnaire. Within 4–6 weeks, 129 of them filled in the questionnaire a second time. Responses were analyzed using the Rasch RUMM2020 software. Results: The final 43 item scale presented a high reliability (R = 0.98) and reproducibility (R = 0.97). The item difficulty hierarchy was consistent over time and did not vary according to age, gender, or clinical form, allowing the follow-up of children from 2 to 18 years old. Conclusions: ACTIVLIM-CP is a unidimensional scale specifically developed to measure global activity performance in children with CP providing a reliable tool to follow children's evolution and document changes related to neurorehabilitation, especially where a combination of UE and LE is targeted. Its responsiveness is still to be tested.