How is a sense of well-being and belonging constructed in the accounts of autistic adults?. Issue 4 (20th April 2016)

• Record Type: Journal Article
• Authors: Milton, Damian; Sims, Tara
• Is Part Of: Disability & society. Volume 31:Issue 4(2016)
• Page Start: 520
• Page End: 534
• Publication Date: 2016-04-20
• Subjects: Autism -- well-being -- belonging -- thematic analysis; People with disabilities -- Periodicals; People with disabilities -- Social conditions -- Periodicals; Special education -- Periodicals; Rehabilitation -- Periodicals; 362.4
• DOI: 10.1080/09687599.2016.1186529
• Languages: English
• ISSNs: 0968-7599

Abstract

Abstract: This small-scale exploratory study sought to develop an understanding of the meaning of well-being and social belonging as represented within the narratives of adults on the autism spectrum. Employing an interpretivist approach facilitated the investigation of potential contributory factors to these lived experiences in order to inform further research regarding both this topic, and service provision for adults on the autism spectrum. The project involved a thematic analysis of issues of the magazine Asperger United (AU). Four broad main themes were identified: meeting personal needs, living with the consequences of an 'othered' identity, connection and recognition, and relationships and advocacy. Autistic adults reported many barriers to feeling that they belonged in a number of social spaces and the detrimental effect this had on their wellbeing. Fundamental to positive narratives of wellbeing, were feelings of connection and recognition from others and positive accepting relationships, with autistic-led spaces, particularly the Autscape conference, being frequently cited as of central significance in increasing feelings of wellbeing and belonging. This study has demonstrated a need for less focus on remediation and more on limiting the social isolation of autistic people.