Parents' experiences and needs regarding physical and occupational therapy for their young children with cerebral palsy. (June 2016)

• Record Type: Journal Article
• Authors: Kruijsen-Terpstra, Anne J.A.; Verschuren, Olaf; Ketelaar, Marjolijn; Riedijk, Larisa; Gorter, Jan Willem; Jongmans, Marian J.; Boeije, Hennie
• Is Part Of: Research in developmental disabilities. Volume 53/54(2016:Jul.)
• Page Start: 314
• Page End: 322
• Publication Date: 2016-06
• Subjects: Parents -- Cerebral palsy -- Experiences -- Physical and occupational therapy -- Empowerment; Developmental disabilities -- Periodicals; Developmentally disabled -- Research -- United States -- Periodicals; Developmentally disabled children -- Education -- Research -- United States -- Periodicals; Developmental Disabilities -- Periodicals; Disabled -- Periodicals; Mental Retardation -- rehabilitation -- Periodicals; Personnes atteintes de troubles du développement -- Recherche -- États-Unis -- Périodiques; Enfants atteints de troubles du développement -- Éducation -- Recherche -- États-Unis -- Périodiques; Développement, Troubles du -- Recherche -- États-Unis -- Périodiques; 616.858800
• DOI: 10.1016/j.ridd.2016.02.012
• Languages: English
• ISSNs: 0891-4222

Abstract

Highlights: Experiences and needs of parents regarding therapy of their young child with CP were investigated. Main themes were: information, communication, partnership and the process of parent empowerment. Experiences and needs differed between parents and changed over time. Abstract: Objective: To explore the experiences and needs of parents of young children (aged 2–4 years) with cerebral palsy (CP) regarding their child's physical and occupational therapy process in a rehabilitation setting. Methods: A qualitative design was used involving semi-structured interviews with 21 parents of young children with CP. Interviews were conducted until informational redundancy was achieved. Results: Three major themes were identified: Information, communication and partnership. A fourth, overarching theme emerged: The process of parent empowerment. Experiences and needs differed between parents and changed over time. Conclusion: This study suggests that various themes play a key role in the experiences and needs of parents of young children with CP. The identified themes provide important insights into how and why service providers might change their approach. Practice implications: Becoming empowered is a dynamic process for parents, in which both parents and service providers play a role. Service providers should continually adapt their role to parents' needs of information, communication and partnership, and they should support and facilitate parents in becoming empowered. For that, service providers should be educated on the process of parent empowerment, on ways to facilitate this process and on the importance of involving and interacting with parents. This allows families of young children with CP to be provided with services that best suit their needs.