Development of a post–intensive care unit storytelling intervention for surrogates involved in decisions to limit life-sustaining treatment. Issue 3 (13th February 2014)

• Record Type: Journal Article
• Authors: Schenker, Yael; Dew, Mary Amanda; Reynolds, Charles F.; Arnold, Robert M.; Tiver, Greer A.; Barnato, Amber E.
• Is Part Of: Palliative & supportive care. Volume 13:Issue 3(2015)
• Page Start: 451
• Page End: 463
• Publication Date: 2014-02-13
• Subjects: Decision making, -- Intensive care unit, -- Terminal care, -- Family members, -- Mental disorders, -- Role of surrogates; Palliative treatment -- Great Britain -- Periodicals; 616.029
• DOI: 10.1017/S1478951513001211
• Languages: English
• ISSNs: 1478-9515

Abstract

Abstract: Objective: Surrogates involved in decisions to limit life-sustaining treatment for a loved one in the intensive care unit (ICU) are at increased risk for adverse psychological outcomes that can last for months to years after the ICU experience. Post-ICU interventions to reduce surrogate distress have not yet been developed. We sought to (1) describe a conceptual framework underlying the beneficial mental health effects of storytelling, and (2) present formative work developing a storytelling intervention to reduce distress for recently bereaved surrogates. Method: An interdisciplinary team conceived the idea for a storytelling intervention based on evidence from narrative theory that storytelling reduces distress from traumatic events through emotional disclosure, cognitive processing, and social connection. We developed an initial storytelling guide based on this theory and the clinical perspectives of team members. We then conducted a case series with recently bereaved surrogates to iteratively test and modify the guide. Results: The storytelling guide covered three key domains of the surrogate's experience of the patient's illness and death: antecedents, ICU experience, and aftermath. The facilitator focused on the parts of a story that appeared to generate strong emotions and used nonjudgmental statements to attend to these emotions. Between September 2012 and May 2013, we identified 28 eligible surrogates from a medical ICU and consented 20 for medical record review and recontact; 10 became eligible, of whom 6 consented and completed the storytelling intervention. The single-session storytelling intervention lasted from 40 to 92 minutes. All storytelling participants endorsed the intervention as acceptable, and five of six reported it as helpful. Significance of Results: Surrogate storytelling is an innovative and acceptable post-ICU intervention for recently bereaved surrogates and should be evaluated further.