Parents' experiences, needs, and preferences in pediatric diabetes care: Suggestions for improvement of care and the possible role of the Internet. A qualitative study. Issue 3 (15th June 2015)

• Record Type: Journal Article
• Authors: Boogerd, Emiel A.; Maas‐van Schaaijk, Nienke M.; Noordam, Cees; Marks, Hans J. G.; Verhaak, Chris M.
• Is Part Of: Journal for specialists in pediatric nursing. Volume 20:Issue 3(2015)
• Page Start: 218
• Page End: 229
• Publication Date: 2015-06-15
• Subjects: Pediatric nursing -- Periodicals; Evidence-based nursing -- Periodicals; Evidence-based pediatrics -- Periodicals; 618.9200231
• DOI: 10.1111/jspn.12118
• Languages: English
• ISSNs: 1539-0136

Abstract

<abstract abstract-type="main"> <title>Abstract</title> <sec id="jspn12118-sec-0001" sec-type="section"> <title>Purpose</title> <p>To investigate the needs and preferences of parents of children with type 1 diabetes (T1D) concerning pediatric diabetes care and use of Internet in care.</p> </sec> <sec id="jspn12118-sec-0002" sec-type="section"> <title>Design and Methods</title> <p>Parents of 34 children, aged 2–12, with T1D participated in seven focus group interviews.</p> </sec> <sec id="jspn12118-sec-0003" sec-type="section"> <title>Results</title> <p>Analysis revealed provision of tailored care, disease information, peer support, and accessibility of healthcare professionals as major needs in parents. Internet could be used to satisfy these needs.</p> </sec> <sec id="jspn12118-sec-0004" sec-type="section"> <title>Practical Implications</title> <p>According to parents, diabetes teams should focus on the impact of the disease, parents' experience, and the child's development, and provide online professional and peer support.</p> </sec> </abstract>