Burden of treatment for chronic illness: a concept analysis and review of the literature. (31st January 2013)

• Record Type: Journal Article
• Authors: Sav, Adem; King, Michelle A.; Whitty, Jennifer A.; Kendall, Elizabeth; McMillan, Sara S.; Kelly, Fiona; Hunter, Beth; Wheeler, Amanda J.
• Is Part Of: Health expectations. Volume 18:Number 3(2015:Sep.)
• Page Start: 312
• Page End: 324
• Publication Date: 2013-01-31
• Subjects: Medical policy -- Periodicals; Public health -- Periodicals; Health planning -- Periodicals; 362.105
• DOI: 10.1111/hex.12046
• Languages: English
• ISSNs: 1369-6513

Abstract

<abstract abstract-type="main" id="hex12046-abs-0001"> <title>Abstract</title> <sec id="hex12046-sec-0001" sec-type="section"> <title>Context</title> <p>Treatment burden, the burden associated with the treatment and management of chronic illness, has not yet been well articulated.</p> </sec> <sec id="hex12046-sec-0002" sec-type="section"> <title>Objective</title> <p>Using Rodgers' (1989, <italic>Journal of Advanced Nursing, </italic> 14, 330–335) method of concept analysis, this review describes the ways in which treatment burden has been conceptualized to define the concept and to develop a framework for understanding its attributes, antecedents and consequences.</p> </sec> <sec id="hex12046-sec-0003" sec-type="section"> <title>Methods</title> <p>Leading databases were searched electronically between the years 2002 and 2011. To ensure the review focused on actual observations of the concept of interest, articles that did not measure treatment burden (either qualitatively or quantitatively) were excluded. An inductive approach was used to identify themes related to the concept of treatment burden.</p> </sec> <sec id="hex12046-sec-0004" sec-type="section"> <title>Main results</title> <p>Thirty articles, identified from 1557 abstracts, were included in the review. The attributes of treatment burden include burden as a dynamic process, as a multidimensional concept, and comprising of both subjective and objective elements. Prominent predisposing factors (antecedents) include the person's age and gender, their family circumstances, possible comorbidity, high use of medications, characteristics of treatment and their relationship with their health‐care provider. The most dominant consequences are poor health and well‐being, non‐adherence to treatment, ineffective resource use and burden on significant others. Furthermore, many of these consequences can also become antecedents, reflecting the cyclic and dynamic nature of treatment burden.</p> </sec> <sec id="hex12046-sec-0005" sec-type="section"> <title>Conclusion</title> <p>The findings underscore the need for researchers and health‐care professionals to engage in collaborative discussions and make cooperative efforts to help alleviate treatment burden and tailor treatment regimens to the realities of people's daily lives.</p> </sec> </abstract>