Perspectives of paediatric and adult gastroenterologists on transfer and transition care of adolescents with inflammatory bowel disease. Issue 5 (May 2014)

• Record Type: Journal Article
• Authors: Wright, E. K.; Williams, J.; Andrews, J. M.; Day, A. S.; Gearry, R. B.; Bampton, P.; Moore, D.; Lemberg, D.; Ravikumaran, R.; Wilson, J.; Lewindon, P.; Radford‐Smith, G.; Rosenbaum, J.; Catto‐Smith, A.; Desmond, P. V.; Connell, W. R.; Cameron, D.; Alex, G.; Bell, S. J.; De Cruz, P.
• Is Part Of: Internal medicine journal. Volume 44:Issue 5(2014)
• Page Start: 490
• Page End: 496
• Publication Date: 2014-05
• Subjects: Medicine -- Periodicals; 616
• DOI: 10.1111/imj.12402
• Languages: English
• ISSNs: 1444-0903

Abstract

<abstract abstract-type="main"> <title>Abstract</title> <sec id="imj12402-sec-0001" sec-type="section"> <title>Background</title> <p>Programmes specific to inflammatory bowel disease (IBD) that facilitate transition from paediatric to adult care are currently lacking.</p> </sec> <sec id="imj12402-sec-9001" sec-type="section"> <title>Aim</title> <p>We aimed to explore the perceived needs of adolescents with IBD among paediatric and adult gastroenterologists and to identify barriers to effective transition.</p> </sec> <sec id="imj12402-sec-0002" sec-type="section"> <title>Methods</title> <p>A web‐based survey of paediatric and adult gastroenterologists in Australia and New Zealand employed both ranked items (Likert scale; from 1 <italic>not important</italic> to 5 <italic>very important</italic>) and forced choice items regarding the importance of various factors in faciitating effective transition of adolescents from paediatric to adult care.</p> </sec> <sec id="imj12402-sec-0003" sec-type="section"> <title>Results</title> <p>Response rate among 178 clinicians was 41%. Only 23% of respondents felt that adolescents with IBD were adequately prepared for transition to adult care. <italic>P</italic><italic>sychological maturity</italic> (<italic>Mean</italic> = 4.3, standard deviation (<italic>SD</italic>) = 0.70) and <italic>readiness as assessed by adult caregiver</italic> (<italic>Mean</italic> = 4, <italic>SD</italic> = 0.72) were prioritised as the most important factors in determining timing of transfer. <italic>Self‐efficacy</italic> and <italic>readiness as assessed by adult caregiver</italic> were considered the two most important factors to determine timing of transition by both groups of gastroenterologists. <italic>Poor medical and surgical handover</italic> (<italic>Mean</italic> = 4.10, <italic>SD</italic> = 0.8) and <italic>patients' lack of responsibility for their own care</italic> (<italic>Mean</italic>= 4.10, <italic>SD</italic> = 0.82) were perceived as major barriers to successful transition by both paediatric and adult gastroenterologists.</p> </sec> <sec id="imj12402-sec-0004" sec-type="section"> <title>Conclusions</title> <p>Deficiencies exist in current transition care of adolescents with IBD in Australia and New Zealand. Standardising transition care practices with strategies aimed at optimising communication, patient education, self‐efficacy and adherence may improve outcomes.</p> </sec> </abstract>