Australian parents' experiences of speech generating device (SGD) service delivery. (April 2014)

• Record Type: Journal Article
• Authors: Anderson, Kate; Balandin, Susan; Stancliffe, Roger
• Is Part Of: Developmental neurorehabilitation. Volume 17:Number 2(2014:Apr.)
• Page Start: 75
• Page End: 83
• Publication Date: 2014-04
• Subjects: Children with disabilities -- Rehabilitation -- Periodicals; Developmentally disabled children -- Rehabilitation -- Periodicals; 615.542
• DOI: 10.3109/17518423.2013.857735
• Languages: English
• ISSNs: 1751-8423

Abstract

<abstract> <title>Abstract</title> <p> <italic>Objective</italic>: To explore parents' perceptions of existing support for families with a new speech generating device (SGD).</p> <p> <italic>Method</italic>: Six Australian parents of school-aged children who used an SGD participated in semi-structured interviews about their experiences of SGD support. Data were explored and compared using narrative analysis.</p> <p> <italic>Results</italic>: Participants discussed barriers to service access, including long waiting lists, service exclusion policies and limited therapist expertise in SGD practice. They emphasized the value of ongoing service coordination for families. Finally, participants discussed the nature of role boundaries and responsibilities for parents vs. therapists in the intervention process and the impact that intervention approaches had on parent autonomy, empowerment and confidence.</p> <p> <italic>Conclusion</italic>: Having an SGD at home generates ongoing support needs, which had not been well met for some parents in our study. Results suggest that timely, well coordinated and family-centred support may enhance service experience for families with a new device.</p> </abstract>