"It gave me something big in my life to wonder and think about which took over the space … and not MS": managing well-being in multiple sclerosis through art-making. (July 2014)

• Record Type: Journal Article
• Authors: Hunt, Laura; Nikopoulou-Smyrni, Panagiota; Reynolds, Frances
• Is Part Of: Disability and rehabilitation. Volume 36:Number 14(2014:Jul.)
• Page Start: 1139
• Page End: 1147
• Publication Date: 2014-07
• Subjects: People with disabilities -- Periodicals; Rehabilitation -- Periodicals; 617.03
• DOI: 10.3109/09638288.2013.833303
• Languages: English
• ISSNs: 0963-8288

Abstract

<abstract> <title>Abstract</title> <p> <italic>Background and aim</italic>: Individuals living with Multiple Sclerosis (MS) often face progressive loss of function, uncertainty and disruption to self-image and valued roles. Previous studies show that creative self-expression is valued by some people living with long-term illness, yet its meaning for people living with MS is unclear. This research study explored the meanings of leisure-based visual art-making for people living with MS. <italic>Method</italic>: This qualitative study followed guidelines for Interpretative Phenomenological Analysis (IPA). Single semi-structured interviews were conducted with five adults (2 males; 3 females; 40–65 years), recruited from MS Ireland. <italic>Findings</italic>: Participants valued art-making for contributing to a more satisfying way of life; for filling occupational voids and using time well. Deep immersion offered respite from worry about illness. Creative classes offered social camaraderie and opportunities for learning and development. Art-making processes and products were highly affirmative, increasing emotional well-being and promoting self-worth. Most felt that they expressed valued aspects of self through their art. Art-making appeared to assist with identity maintenance, accommodating functional losses associated with MS whilst opening "new doors". <italic>Conclusion</italic>: Art-making offered a multi-faceted means of supporting identity and increasing fulfilment in lives that were restricted in many ways by MS.<list list-type="bullet"><title>Implications for Rehabilitation</title><list-item><p>Creative leisure activities may offer people with MS a flexible means of using time and filling occupational voids increasing satisfaction and well-being.</p></list-item><list-item><p>Art and craft classes may offer people with MS opportunities to socialise and provide a source of personal development.</p></list-item><list-item><p>Deep immersion in creative activities may offer the experience of respite from worry about MS.</p></list-item><list-item><p>Some people with MS are able to take up creative activities for the first time after the onset of illness and find them meaningful and supportive of well-being; at least minimal pre-illness interest in arts and crafts seems helpful to provide basic confidence and skills; availability of accessible, welcoming art classes also seems to encourage participation.</p></list-item></list></p> </abstract>