Caring for people with early and advanced chronic obstructive pulmonary disease: how do family carers cope?. Issue 1 (2nd August 2013)

• Record Type: Journal Article
• Authors: Figueiredo, Daniela; Gabriel, Raquel; Jácome, Cristina; Marques, Alda
• Is Part Of: Journal of clinical nursing. Volume 23:Issue 1/2(2014)
• Page Start: 211
• Page End: 220
• Publication Date: 2013-08-02
• Subjects: Nursing -- Periodicals; Clinical medicine -- Periodicals; 610.7305
• DOI: 10.1111/jocn.12363
• Languages: English
• ISSNs: 0962-1067

Abstract

<abstract abstract-type="main" id="jocn12363-abs-0001"> <title> <x xml:space="preserve">Abstract</x> </title> <sec id="jocn12363-sec-0001" sec-type="section"> <title>Aims and objectives</title> <p>To examine the coping strategies of family carers of people with early and advanced chronic obstructive pulmonary disease and how those relate to their subjective health.</p> </sec> <sec id="jocn12363-sec-0002" sec-type="section"> <title>Background</title> <p>Caring for a family member with chronic obstructive pulmonary disease can be a stressful experience. Understanding how carers cope with this is critical for improving outcomes. However, this topic has received little attention in the literature, particularly considering the care‐giving experience with early chronic obstructive pulmonary disease.</p> </sec> <sec id="jocn12363-sec-0003" sec-type="section"> <title>Design</title> <p>A cross‐sectional study with a convenience sample of family carers of people with chronic obstructive pulmonary disease.</p> </sec> <sec id="jocn12363-sec-0004" sec-type="section"> <title>Methods</title> <p>A structured questionnaire was used to collect data on socio‐demographics and care‐giving characteristics. Self‐rated physical and mental health was measured by two items from the International Classification of Functioning, Disability and Health checklist. Coping strategies were assessed with the Carers' Assessment of Managing Index. Descriptive and inferential analyses were performed.</p> </sec> <sec id="jocn12363-sec-0005" sec-type="section"> <title>Results</title> <p>A total of 158 family carers participated: 109 caring for people with early and 49 with advanced chronic obstructive pulmonary disease. The two groups differed significantly on self‐rated mental health and on problem‐solving, emotional‐cognitive and managing stress coping type. Significant correlations between self‐rated physical health and problem‐solving coping and between self‐rated mental health and emotion‐cognitive and managing stress coping were found for carers of patients with advanced chronic obstructive pulmonary disease.</p> </sec> <sec id="jocn12363-sec-0006" sec-type="section"> <title>Conclusions</title> <p>This study provides a unique insight into family carer coping strategies at different stages of chronic obstructive pulmonary disease. Carers of people with early and advanced chronic obstructive pulmonary disease cope differently with their caring demands. Nevertheless, problem‐focused coping strategies were perceived as the most helpful by both groups.</p> </sec> <sec id="jocn12363-sec-0007" sec-type="section"> <title>Relevance to clinical practice</title> <p>The findings are relevant to informing early supportive interventions aiming to prevent burden and promote healthy adjustment to care‐giving demands within the specific context of chronic obstructive pulmonary disease.</p> </sec> </abstract>