HOW TO DEVELOP A PATIENT AND CARER ADVISORY GROUP IN A QUALITY IMPROVEMENT STUDY. Issue 2 (13th August 2013)

• Record Type: Journal Article
• Authors: Loud, Fiona; Jain, Neerja; Thomas, Nicola; Thomas, Nicola
• Is Part Of: Journal of renal care. Volume 39:Issue 2(2013:Jun.)
• Page Start: 2
• Page End: 9
• Publication Date: 2013-08-13
• Subjects: Kidneys -- Diseases -- Nursing -- Periodicals; Hemodialysis -- Periodicals; Kidney Diseases -- nursing -- Periodicals; Renal Replacement Therapy -- nursing -- Periodicals; 616.61
• DOI: 10.1111/j.1755-6686.2013.12032.x
• Languages: English
• ISSNs: 1755-6678

Abstract

<abstract abstract-type="main" xml:lang="en"> <title>SUMMARY</title> <sec id="jorc12032-sec-0001" sec-type="section"> <title>Background</title> <p>This paper explores how a group of people with renal or other vascular conditions collaborated with renal practitioners in undertaking a quality improvement project, the aim of which was to reduce variation in care for people with Stages 3–4 chronic kidney disease.</p> </sec> <sec id="jorc12032-sec-0002" sec-type="section"> <title>Development and Role of the Group</title> <p>The patient advisory group supporting the project took a decisive and leading role in the creation of self‐management materials and subsequent training for healthcare professionals and patients. The role of the patient advisory group was evaluated informally throughout the project. Confidence amongst the patient advisory group members grew as the project developed.</p> </sec> <sec id="jorc12032-sec-0003" sec-type="section"> <title>Conclusion</title> <p>Clinicians are often unclear on how to involve patients and carers in quality improvement projects, yet it is increasingly recognised as important. In practice, patients with experience of long‐term conditions can co‐lead quality improvement projects. It is recommended that further evaluation of the role of advisory groups is warranted.</p> </sec> </abstract>