Understanding profound intellectual and multiple disabilities in adults. (2019)

• Record Type: Book
• Further Information: Note: Dreenagh Lyle.
• Authors: Lyle, Dreenagh
• Contents: Preface Chapter One: The ‘ignored minority’ Introduction Why terms and definitions are important UK and International terms PMLD > PIMD Research issues Definitions PIMD Definition Prevalence PIMD overlooked Bibliography Chapter Two: Policy Frameworks Introduction Representation or overlooked? Normalisation Social model and ‘embodiment’ or second wave social model Post-structural social model and ‘brute facts’ of genetics Personalisation Self-advocacy aka Speaking Up Acknowledging difference in service provision Beyond social model frameworks Bibliography Chapter Three: Disrupting the Illusion The New Vision: Rights, Independence, Choice and Inclusion Overview of storyline with reference to PIMD Construction of target population Spreading the Word, Advocacy, Personalisation and Employment Implications for services for services for people with PIMD Informal Family Carers Formal Care Workers Bibliography Chapter Four: All In The Same Direction Introduction Background Communication Communication Communication Culture of personalised support Consistency & Clarity =Trust Routine = Consistency of approach When ‘no’ means’no’ Echoed words rather than language Guidelines, Charts, Feedback sheets Physical Intellectual and Sensory access Food and eating Water and Aloe Vera juice / digestion and elimination Physiotherapy and deep tissue massage Blood tests Music therapy Behavioural Support Needs: Where does the ‘challenge’ lie? Containment Building a team Training/Development Goals Task Breakdown Conclusion Resources Bibliography Chapter Five: Raising our Sights Introduction Settings and services Personalisation Why film is important Raising our Sights Families ‘R’espite or ‘r’espite Day / respite services Still fighting Community Specialist Health teams Training Bespoke training Conclusion Resources Bibliography Chapter Six: Raising The Bar: beyond the ‘burden of non productiveness’ Introduction Abuse Death by Indifference Improving Health and Lives CIPOLD > :LeDR Advocacy Advocacy Advocacy Core and Essential Service Standards: Raising The Bar Conclusion Resources Bibliography Index
• Publisher Details: Abingdon, Oxon New York, NY : Routledge
• Publication Date: 2019
• Extent: 1 online resource
• Subjects: 362.2; People with mental disabilities -- Services for; People with mental disabilities -- Care; POLITICAL SCIENCE / Public Policy / Social Security; POLITICAL SCIENCE / Public Policy / Social Services & Welfare; EDUCATION / Special Education / Learning Disabled; SOCIAL SCIENCE / Social Work; SOCIAL SCIENCE / Sociology / General; People with mental disabilities -- Care; People with mental disabilities -- Services for; Electronic books; Electronic books
• Languages: English
• ISBNs: 9780429019791; 0429019793; 9780429672507; 0429672500; 9780429669521; 0429669526; 9780429671012; 0429671016
• Related ISBNs: 9780367029623; 0367029626
• Notes: Note: Includes bibliographical references and index.; Note: Print version record.
• Access Rights: Legal Deposit; Only available on premises controlled by the deposit library and to one user at any one time; The Legal Deposit Libraries (Non-Print Works) Regulations (UK).
• Access Usage: Restricted: Printing from this resource is governed by The Legal Deposit Libraries (Non-Print Works) Regulations (UK) and UK copyright law currently in force.