Global genes, local concerns : legal, ethical, and scientific challenges in international biobanking /: legal, ethical, and scientific challenges in international biobanking. ([2019])

• Record Type: Book
• Further Information: Note: Edited by Timo Minssen, Janne Rothmar Herrman, Jens Schovsbo.
• Editors: Minssen, Timo; Herrmann, Janne Rothmar; Schovsbo, Jens
• Contents: Big data and the ethics of detail : the role of ethics work in the making of a cross-national research infrastructure for genetic research / Klaus Hoeyer, Aaro Tupasela, Malene Bøgehus Rasmussen -- Biobanks as knowledge institutions / Michael J. Madison -- Biobanks as innovation infrastructure for translational medicine / W. Nicholson Price II -- Responsible use of human biosamples in the bioscience industries / Brian J Clark and Tina Bossow -- Biobanking, scientific productions and human rights / Peter K. Yu -- You told me, right? -- Free and informed consent in European patent law / Åsa Hellstadius and Jens Schovsbo -- Dynamic consent and biobanking -- a means of fostering sustainability? / Jane Kaye and Megan Prictor -- Generating trust in biobanks within the context of commercialization : can dynamic consent overcome trust challenges? / Esther van Zimmeren -- Exploitation and vulnerabilities in consent to biobank research in developing countries / Nana Cecilie Halmsted Kongsholm -- Biobanking and the consent problem / Timothy Caulfield and Blake Murdoch -- Responsible research and innovation and the advancement of biobanking and biomedical research / Helen Yu -- Do we need an expiration date for biobanks? / Franziska Vogl and Karine Sargsyan -- Biobanks and biobank networks / Eva Ortega-Paíno and Aaro Tupasela -- IP policies for large bioresources : the fiction, fantasy and future of openness / Kathleen Liddell, Johnathan Liddicoat and Matthew Jordan.
• Publisher Details: Cheltenham, UK Northampton, MA : Edward Elgar Publishing
• Publication Date: 2019
• Extent: 1 online resource (xv, 282 pages)
• Subjects: 344.04/196; Biobanks -- Law and legislation; Biobanks -- Ethics; LAW / Administrative Law & Regulatory Practice; Biological Specimen Banks -- ethics; Ethics, Medical; Tissue and Organ Procurement -- ethics; Electronic books; Electronic books
• Languages: English
• ISBNs: 9781788116190; 1788116194
• Related ISBNs: 1788116186; 9781788116183
• Notes: Note: Includes bibliographical references and index.; Note: Description based on online resource; title from digital title page (viewed on April 30, 2019).
• Access Rights: Legal Deposit; Only available on premises controlled by the deposit library and to one user at any one time; The Legal Deposit Libraries (Non-Print Works) Regulations (UK).
• Access Usage: Restricted: Printing from this resource is governed by The Legal Deposit Libraries (Non-Print Works) Regulations (UK) and UK copyright law currently in force.