Ethics, law and governance of biobanking : national, European and international approaches /: national, European and international approaches. (2015)

• Record Type: Book
• Further Information: Note: Deborah Mascalzoni, editor.
• Editors: Mascalzoni, Deborah
• Contents: Ethics law and governance of biobanking : a very complex normative puzzle / Deborah Mascalzoni -- Biobanks : a definition / Barbara Parodi -- A participatory space beyond the "autonomy versus property" dichotomy / Mariachiara Tallacchini -- Intellectual property and biobanks / Naomi Hawkins -- Consent, privacy and property in the Italian biobanks regulation : a hybrid model within EU? / Matteo Macilotti, Simone Penasa and Marta Tomasi -- Data protection principles and research in the biobanks age / Roberto Lattanzi -- The new general data protection regulation : where are we are and where might we be heading? / Jane Reichel and Anna-Sara Lind -- The tension between data sharing and the protection of privacy in genomics research / Jane Kaye -- Incidental findings : the time is not yet ripe for a policy for biobanks / Jennifer Viberg, Mats G. Hansson, Sophie Langenskiöld and Pär Segerdahl -- Biobanking across borders : the challenges of harmonisation / Ruth Chadwick and Heather Strange -- Governing biobanks through a European infrastructure / Emmanuelle Rial-Sebbag and Anne Cambon-Thomsen -- EU governance for research and ethics in biobanks / Jane Reichel -- A bold experiment : Iceland's genomic venture / David Winickoff -- The Estonian Genome Center, University of Tartu / Aime Keis -- Management of the ethical aspects of a local mental diseases biobank for research purposes : the Italian experience / Corinna Porteri -- Biobank governance in Spain : from the autonomy of research ethics committees to the autonomy of lay people / Antonio Casado da Rocha -- Public deliberation and the role of stakeholders as a new frontier in the governance of science : the British Columbia Biobank Deliberation and the DePGx Project / Claudio Corradetti and Gillian Bartlett -- Making researchers moral / Linus Johnsson, Stefan Eriksson, Gert Helgesson and Mats G. Hansson.
• Publisher Details: Dordrecht [Netherlands] : Springer
• Publication Date: 2015
• Extent: 1 online resource
• Subjects: 174.957; Biobanks; Bioethics; Biobanks -- Moral and ethical aspects; BUSINESS & ECONOMICS -- Business Ethics; Biobanks; Bioethics; Biological Specimen Banks -- ethics; Biological Specimen Banks -- legislation & jurisprudence; Ethics, Research; Medicine & Public Health; Theory of Medicine/Bioethics; Civil Law; Ethics; Electronic books
• Languages: English
• ISBNs: 9789401795739; 9401795738; 9789401795722
• Related ISBNs: 940179572X; 9789401795722
• Notes: Note: Includes bibliographical references.; Note: Vendor-supplied metadata.
• Access Rights: Legal Deposit; Only available on premises controlled by the deposit library and to one user at any one time; The Legal Deposit Libraries (Non-Print Works) Regulations (UK).
• Access Usage: Restricted: Printing from this resource is governed by The Legal Deposit Libraries (Non-Print Works) Regulations (UK) and UK copyright law currently in force.