The ethics of biomedical big data. ([2016])

• Record Type: Book
• Further Information: Note: Brent Daniel Mittelstadt, Luciano Floridi, editors.
• Editors: Mittelstadt, Brent Daniel; Floridi, Luciano, 1964-
• Contents: Contributors; Introduction; 1 Background; 2 Big Data; 3 Biomedical Big Data; 4 Structure of the Volume; 4.1 Part I: Balancing Individual and Collective Interests; 4.2 Part II: Privacy and Data Protection; 4.3 Part III: Consent; 4.4 Part IV: Ethical Governance; 4.5 Part V: Professionalism and Ethical Duties; 4.6 Part VI: Foresight; References; Part I Balancing Individual and Collective Interests; "Strictly Biomedical? Sketching the Ethics of the Big Data Ecosystem in Biomedicine"; 1 The Chiaroscuro Portrait of Big Data; 2 Typical Big Biomedical Data 3 Non-biomedical Big Data of Great Biomedical Value3.1 Loyalty Cards Points; 3.2 Social Media; 3.3 Mobile Devices; 4 The Digital Phenotype; 5 Towards a New Ethical Framework; 5.1 Vision for a New Framework; 5.2 Design Requirements; 5.3 Substantive Key Elements; 5.3.1 (1) Ethical Use and Privacy; 5.3.2 (2) Data Governance; 5.3.3 (3) Transparency and Accountability; 6 Conclusion; References; Using Transactional Big Data for Epidemiological Surveillance: Google Flu Trends and Ethical Implications of `Infodemiology'; 1 Introduction; 2 A Pragmatist Approach to Ethics; 3 Historical Overview 3.1 Infodemiology: Covering `Supply' and `Demand'3.2 Analysing Health Information Demand; 4 Case Study: Google Flu Trends; 4.1 Normative Assumptions, Justifications and Values; 4.1.1 Epidemics of Fear; 4.1.2 The `Innocent User' as Ideal Data Source; 4.1.3 Privacy; 4.2 Discourse Ethics; 4.2.1 Institutional Context; 4.2.2 Stakeholder Analysis; 5 Conclusion; References; Denmark at a Crossroad? Intensified Data Sourcing in a Research Radical Country; 1 Introduction; 2 From Data Mining to Intensified Data Sourcing; 3 Denmark: A Country at a Crossroad; 3.1 The Register Infrastructure 3.2 The Lenient Legal System3.3 Initiatives to Facilitate Research; 3.4 Conflicts About Data Sourcing and Initiatives to Limit Data Availability; 4 Ethical Debates and Their Limitations; 4.1 The Individual and the Population; 4.2 Why Focus on Research Uses of Data?; 5 Concluding Remarks; References; A Critical Examination of Policy-Developments in Information Governance and the Biosciences; 1 Introduction; 2 Policy Developments: An Overview; 2.1 Legislative Changes; 3 The Changing Landscape of Information Governance; 4 The `Value Impact' of Genomics; 5 Changing Perspectives 6 The Locking-in of the Economic Paradigm in the Biosciences7 Reflexivity; 8 Democratic Deficit and the Conditions for Meaningful Public Discourse; 8.1 Societal Tendencies and the Normative Grounds of a Deliberative Approach; 8.2 A Clarification of the Risks; 9 New Powers and Novel Challenges; 10 Conclusion; References; Part II Privacy and Data Protection; Many Have It Wrong -- Samples Do Contain Personal Data: The Data Protection Regulation as a Superior Framework to Protect Donor Interests in Biobanking and Genomic Research; 1 Introduction; 1.1 The Genomic Research Process: Four Stages
• Publisher Details: Switzerland : Springer
• Publication Date: 2016
• Extent: 1 online resource
• Subjects: 174.957; Philosophy; Bioethics; Life sciences -- Databases -- Moral and ethical aspects; Big data -- Moral and ethical aspects; Data mining; Health economics; Ethics; BUSINESS & ECONOMICS / Business Ethics; Bioethics; Computers -- Database Management -- Data Mining; Business & Economics -- Economics -- General; Philosophy -- Ethics & Moral Philosophy; Data mining; Health economics; Ethics & moral philosophy; Philosophy -- Reference; Philosophy; Biomedical Research -- ethics; Datasets as Topic -- ethics; Confidentiality -- ethics; Bioethical Issues; Electronic books
• Languages: English
• ISBNs: 9783319335254; 3319335251; 3319335235; 9783319335230
• Related ISBNs: 9783319335230
• Notes: Note: Includes bibliographical references.; Note: Online resource; title from PDF title page (EBSCO, viewed August 23, 2016).
• Access Rights: Legal Deposit; Only available on premises controlled by the deposit library and to one user at any one time; The Legal Deposit Libraries (Non-Print Works) Regulations (UK).
• Access Usage: Restricted: Printing from this resource is governed by The Legal Deposit Libraries (Non-Print Works) Regulations (UK) and UK copyright law currently in force.