100 questions (and answers) about research ethics. (2017)

• Record Type: Book
• Other Titles: One hundred questions (and answers) about research ethics; Hundred questions (and answers) about research ethics
• Further Information: Note: Emily E. Anderson, Amy Corneli.
• Authors: Anderson, Emily E; Corneli, Amy
• Contents: Preface; Acknowledgments; About the Authors; PART 1: UNDERSTANDING ETHICS IN RESEARCH WITH HUMAN PARTICIPANTS; 1. What Is Ethics, and How Does It Apply to Research With Human Participants?; 2. What Is the Ethical Justification for Conducting Research With Human Participants?; 3. What Broad Ethical Principles Apply to Research With Human Participants?; 4. What Ethical Guidance and Regulations Inform Research With Human Participants, and What, If Anything, Has Changed Over Time?; 5. What Is the Relationship Between Ethics and Compliance?; 6. What Are the Potential Consequences of Ignoring Ethical Principles and Regulations?; 7. What Kinds of Research Are Considered Unethical, and What Are Some Examples of Serious Ethical Lapses in Social and Behavioral Sciences Research?; 8. How Do Standard Ethical Practices for Research Vary Among Academic Disciplines in the Social and Behavioral Sciences?; 9. Who Is Responsible for Ensuring Research Is Conducted Ethically?; 10. When I Begin Developing My Research, What Ethical Issues Should I First Consider?; PART 2: ASSESSING RESEARCH RISKS AND BENEFITS; 11. What Is Risk, and What Are the Risks in Social and Behavioral Sciences Research?; 12. How Do I Identify Risks in My Research—and Minimize Them?; 13. What Is Meant by “Minimal Risk”?; 14. What Are the Potential Benefits of Research?; 15. How Do I Design My Research So That the Risk-Benefit Balance Is Favorable?; 16. How Do I Make Sure That Participants in My Research Do Not Overestimate the Benefits or Underestimate the Risks?; 17. I Will Conduct Research on a Sensitive Topic. What Should I Do to Prevent Psychological Harms?; PART 3: PROTECTING PRIVACY AND CONFIDENTIALITY; 18. What Is Meant by “Privacy” and “Confidentiality, ” and Is There a Difference?; 19. What Makes Data De-Identified?; 20. What Makes Data Anonymous?; 21. When Is Information (or Behavior) Considered Private Rather Than Public, and How Can Private Information Be Used in Research?; 22. What Can I Do to Protect Participants’ Privacy During Data Collection and Reporting?; 23. What Can I Do to Protect the Confidentiality of Information Collected?; 24. When Must I Share Study Data—and Participant Names—With Individuals Outside of the Research Team?; 25. What Is a Certificate of Confidentiality?; 26. What Privacy Laws Must I Follow?; PART 4: PROTECTING VULNERABLE POPULATIONS; 27. What Kinds of Participants Are Considered Vulnerable in Research, and What Are Some Ways to Protect Vulnerable Participants?; 28. What Ethical Issues Should I Consider When Conducting Research With Prisoners?; 29. What Ethical Issues Should I Consider When Conducting Research With Pregnant Women?; 30. What Ethical Issues Should I Consider When Conducting Research With Children?; 31. What Ethical Issues Should I Consider When Conducting Research With Individuals Who Have Experienced Traumatic Events?; 32. What Ethical Issues Should I Consider When Conducting Research With Adults Who May Lack Decision-Making Capacity Due to Cognitive Impairment?; 33. What Ethical Issues Should I Consider When Conducting Research With Students, Particularly Students Whom I Teach?; PART 5: OBTAINING INFORMED CONSENT; 34. What Is Informed Consent?; 35. What Is the Informed Consent Process?; 36. What Is an Informed Consent Form?; 37. When Is Informed Consent Required?; 38. What Is the Difference Between Written and Verbal Informed Consent, and When Can Verbal Informed Consent Be Used?; 39. What Are the Requirements for Informing Participants in Research That Is Determined to Be Exempt From the Federal Regulations?; 40. What Type of Information Must Be Included in an Informed Consent Form?; 41. How Do I Write a Consent Form That Is Easy to Understand?; 42. How Do I Obtain Informed Consent?; 43. Who Can Consent to Research Participation?; 44. What Do I Do With the Consent Form After It Is Signed by a Participant?; 45. How Do I Obtain Informed Consent From a Prospective Participant Who Cannot Read the Consent Form?; 46. How Do I Obtain Informed Consent From Prospective Participants Who Speak a Different Language From Mine?; 47. How Can I Obtain Informed Consent From Individuals With Cognitive Impairments or Developmental Disabilities?; 48. How Do I Know If a Prospective Participant Understands the Research?; 49. How Do I Ensure That a Participant’s Consent Is Voluntary?; 50. Do I Need to Obtain Informed Consent Before Asking Screening Questions?; 51. Do I Need to Obtain Informed Consent From Individuals to Use Their Existing Data That Were Collected for Other Purposes?; 52. How Are Parents Involved in Decision Making About Their Children’s Participation in Research?; 53. What Type of Agreement Do I Need From Children So They Can Participate in Research?; 54. How Should I Obtain Informed Consent From Prospective Participants When I’m Conducting Research Outside the United States?; PART 6: DESIGNING ETHICAL RESEARCH; 55. How Do I Ensure That Eligibility Criteria Are Appropriate and Fair?; 56. What Strategies Can I Use to Ethically Recruit People to Join My Research?; 57. When Is It Appropriate to Pay Participants for Taking Part in Research?; 58. How Do I Determine the Appropriate Amount to Pay Research Participants?; 59. What Ethical Issues Should I Consider When Conducting Focus Group Discussions?; 60. What Ethical Issues Should I Consider When Conducting Participant Observations?; 61. What Are Some of the Ethical Issues Raised by Deception in Research, and When Is It Ethically Acceptable to Use Deception?; 62. What Ethical Issues Should I Consider If My Intervention Research Includes a Control Group?; 63. What Ethical Issues Should I Consider When Conducting Research in a Defined Community?; 64. What Is the Relationship Between Community Engagement and Research Ethics?; 65. What Does Cultural Competence Mean, and How Do I Apply It to Research Ethics?; 66. What Ethical Guidelines and Regulations Should I Consider When Conducting Research in Another Country?; PART 7: ADDRESSING ETHICAL ISSUES IN ONLINE RESEARCH; 67. Are There Specific Ethical Guidelines for Conducting Research Online?; 68. What Ethical Issues Should I Consider When Recruiting Study Participants Online?; 69. What Ethical Issues Should I Consider When Collecting New Data Online?; 70. What Ethical Issues Should I Consider When Using Data That Already Exist Online?; 71. How Do I Document Informed Consent When Conducting Research Online—and Ensure That Participants Understand the Research?; 72. Is It Ethical for Me to Join an Online Discussion Group or Chat Room for Research Purposes Without Informing the Group That I’m a Researcher?; 73. How Do I Verify the Age of Individuals Who Participate in My Online Research?; PART 8: NEGOTIATING THE IRB REVIEW PROCESS; 74. What Is an IRB, and Who Are the Members?; 75. How Do I Know If My Study Must Be Reviewed by an IRB?; 76. How Do I Know Which IRB—and How Many IRBs—Must Review and Approve My Proposed Research?; 77. When Is a Research Study “Exempt” From the Federal Research Regulations, and What Does This Mean?; 78. What Is Expedited Review?; 79. What Is the Difference Between Expedited and Full Board Review?; 80. What Materials Will I Need to Submit to the IRB?; 81. What Can I Expect During the IRB Review Process?; 82. Before IRB Approval, What Can I Do and Not Do?; 83. What Are Changes That the IRB Can Request, and How Do I Respond?; 84. What Should I Do If I Want to Change the Protocol, Consent Form, or Other Documents After They Have Been Approved by an IRB?; 85. What Should I Do If My Research Requires Continuing Review?; 86. I Am Collecting Data for a Class Project. Do I Need IRB Approval?; 87. I Am Conducting an Evaluation of a Program. Do I Need IRB Approval?; PART 9: UNDERSTANDING ETHICAL RESPONSIBILITIES OF DATA USE; 88. What Confidentiality Procedures Should I Put in Place After All Data Have Been Collected?; 89. How Long Must I Keep My Research Records?; 90. When Can I Destroy My Research Files?; 91. Do I Have an Ethical Obligation to Publish My Research Findings?; 92. Can I Publish My Findings If I Did Not Get IRB Approval or Obtain Informed Consent From Participants?; 93. What Do I Need to Do to Ensure That I Protect Participants’ Identities When Sharing Datasets With Others and That Participants Are Informed of This Possibility?; 94. Can I Show Participants Their Transcripts or the Transcripts of Other Participants?; 95. Should I Share the Results of My Research With Study Participants?; PART 10: HANDLING ETHICAL ISSUES THAT ARISE DURING RESEARCH IMPLEMENTATION; 96. What Should I Do If I—or a Study Staff Member or Participant—Do Something That Was Not in the Approved Protocol?; 97. What Should I Do If Someone Is Physically, Emotionally, or Socially Harmed From Taking Part in My Research?; 98. What Should I Do If a Participant Says He Wants to Harm Himself or Someone Else
• Edition: 1st
• Publisher Details: Los Angeles : SAGE
• Publication Date: 2017
• Extent: 1 online resource
• Subjects: 174.90014; Social sciences -- Research -- Moral and ethical aspects; Research -- Moral and ethical aspects; Participant observation -- Moral and ethical aspects
• Languages: English
• ISBNs: 9781506348728
• Notes: Note: Description based on CIP data; resource not viewed.
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