Disclosure dilemmas : ethics of genetic prognosis after the 'right to know/not to know' debate /: ethics of genetic prognosis after the 'right to know/not to know' debate. (2017)

• Record Type: Book
• Further Information: Note: Edited by Christoph Rehmann-Sutter, Hansjakob Müller.
• Other Names: Rehmann-Sutter, Christoph, 1959-; Müller, Hj (Hansjakob)
• Contents: The right to know, and the right not to know : ten years on / Ruth Chadwick -- Genetic counseling : placing the room in context / Barbara Katz Rothman -- Genetic counselling : clinical settings and constraints / Hansjakob Müller -- Prevention of harmful false diagnosis versus threat by disclosure of an inheritable disease : a medical case / David Winkler and Philippe Lyrer -- Communication yes, but how : and what? Commentary to the case presented by David Winkler and Philippe Lyrer / Christoph Rehmann-Sutter -- The need for an ethics of kinship : decision stories and patients' context / Rouven Porz -- Testing for susceptibility genes : a cautionary tale / Margaret Lock -- 'If only I had (not) known that' : about risk-individualisation, chance-specification, and the loss of certainty of not-knowing / Tjeerd Tymstra -- The symbolic fallout of gene talk : replacing the person with manageable constructs / Silja Samerski -- Predictive genetic testing of adolescents at risk of inherited arrhythmic death / Jane Kaye, Michael Parker and Edward Blair -- How legal frameworks construct patterns of liability in genetic counseling : an international perspective / Daniel Wied, Susanne Listl, and Maximilian Seibl -- Responsibility towards relatives / Michael Steel -- Careful communication of 'bad news' : the cancer experience / Wolf Langewitz -- The responsibility of the truth-teller / Thomas Cerny -- Practising informed choice : decision making and prenatal risk assessment : the Danish experience / Nete Schwennesen, Lene Koch, and Mette Nordahl Svendsen -- Receiving and interpreting information : a joint enterprise / Jackie Leach Scully -- Without disclosure, no informed choice / Peter Miny -- Allowing agency : an ethical model for communicating personal genetic information / Christoph Rehmann-Sutter.
• Publisher Details: Place of publication not identified : Routledge
• Publication Date: 2017
• Extent: 1 online resource (296 pages)
• Subjects: 344.04196; Genetic screening -- Law and legislation; Genetic counseling -- Law and legislation; Medical ethics
• Languages: English
• ISBNs: 9781351943819; 1351943812
• Access Rights: Legal Deposit; Only available on premises controlled by the deposit library and to one user at any one time; The Legal Deposit Libraries (Non-Print Works) Regulations (UK).
• Access Usage: Restricted: Printing from this resource is governed by The Legal Deposit Libraries (Non-Print Works) Regulations (UK) and UK copyright law currently in force.