Ethical issues in governing biobanks : global perspectives /: global perspectives. (2016)

• Record Type: Book
• Further Information: Note: Edited by Bernice Elger ... [et al.].
• Other Names: Elger, Bernice
• Contents: Biobanks, genomics, and research: a nightmare for public policy makers? / Alex Mauron -- Biobanks in the literature / Bartha Maria Knoppers and Maøn H. Abdul-Rahman -- Guidelines on biobanks: emerging consensus and unresolved controversies / Effy Vayena, Agomoni Ganguli-Mitra, and Nikola Biller-Andorno -- Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts / Nikola Biller-Andorno ... [et al.] -- Consent and use of samples / Bernice Elger -- Consent to research involving human biological samples obtained during medical care / Bernice Elger -- Collective consent / Agomoni Ganguli-Mitra -- Withdrawal of consent and destruction of samples / Bernice Elger -- Anonymization and coding / Bernice Elger -- Informing participants about research results / Andrea Boggio -- Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries / Andrea Boggio -- Public domain sharing, patents, and fees resulting from research involving genetic databases / Andrea Boggio -- Benefit-sharing and remuneration / Agomoni Ganguli-Mitra -- Transfer of samples and sharing of results : requirements imposed on researchers / Andrea Boggio -- Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks / Alex Mauron -- Biobanks and genomic research : what shape the future? / Alex Capron.
• Publisher Details: Place of publication not identified : Routledge
• Publication Date: 2016
• Extent: 1 online resource (268 pages)
• Subjects: 174.2; Human genetics -- Databases -- Moral and ethical aspects; Human genetics -- Databases -- Law and legislation; Genome, Human; Confidentiality; Databases, Genetic -- ethics; Databases, Genetic -- legislation & jurisprudence; Genetic Research -- ethics; Genetics, Population -- ethics
• Languages: English
• ISBNs: 9781317141488; 1317141482
• Access Rights: Legal Deposit; Only available on premises controlled by the deposit library and to one user at any one time; The Legal Deposit Libraries (Non-Print Works) Regulations (UK).
• Access Usage: Restricted: Printing from this resource is governed by The Legal Deposit Libraries (Non-Print Works) Regulations (UK) and UK copyright law currently in force.