Biobanks : governance in comparative perspective /: governance in comparative perspective. (2008)

• Record Type: Book
• Further Information: Note: Edited by Herbert Gottweis and Alan Petersen.
• Other Names: Gottweis, Herbert, 1958-; Ph. D, Petersen, Alan R
• Contents: Biobanks and governance : an introduction / Herbert Gottweis and Alan Petersen -- Biobanks in action : new strategies in the governance of life / Herbert Gottweis -- The rise and fall of a biobank : the case of Iceland / Gísli Pálsson -- Estonia : ups and downs of a biobank project / Rain Eensaar -- Patient organizations as the (un)usual suspects : the biobanking activities of the Association française contre les myopathies and its Généthon DNA and Cell Bank / Michaela Mayrhofer -- "This is not a national biobank" : the politics of local biobanks in Germany / Ingrid Schneider -- Governing DNA : prospects and problems in the proposed large United States population cohort / Amy Fletcher -- Governance by stealth : large-scale pharmacogenomics and biobanking in Japan / Robert Triendl and Herbert Gottweis -- UK biobank : bioethics as a technology of governance / Oonagh Corrigan and Alan Petersen -- Biobanks and the biopolitics of inclusion and representation / Richard Tutton -- The informed consenters : governing biobanks in Scandinavia / Lars Øystein Ursin, Klaus Hoeyer, & John-Arne Skolbekken -- Framing consent : the politics of "engagement" in an Australian biobank project / Beverley McNamara and Alan Petersen -- Governing through biobanks : research populations in Israel / Barbara Prainsack.
• Publisher Details: Place of publication not identified : Routledge
• Publication Date: 2008
• Extent: 1 online resource (248 pages), (1 illustrations)
• Subjects: 174/.957; SOCIAL SCIENCE / Sociology / General; Human genetics -- Databases -- Moral and ethical aspects -- Cross-cultural studies; Biobanks -- Government policy -- Cross-cultural studies; Biobanks -- Political aspects -- Cross-cultural studies; Databases, Genetic -- legislation & jurisprudence; Confidentiality -- legislation & jurisprudence; Databases, Genetic -- ethics; Public Policy; TECHNOLOGY & ENGINEERING / Social Aspects
• Languages: English
• ISBNs: 9781134090266; 1134090269
• Access Rights: Legal Deposit; Only available on premises controlled by the deposit library and to one user at any one time; The Legal Deposit Libraries (Non-Print Works) Regulations (UK).
• Access Usage: Restricted: Printing from this resource is governed by The Legal Deposit Libraries (Non-Print Works) Regulations (UK) and UK copyright law currently in force.