1. ASPECTS OF PATIENT REPORTED OUTCOMES IN RARE DISEASES: A DISCUSSION PAPER. (15th August 2016) Authors: Rüther, Alric; Elstein, Deborah; Wong-Rieger, Durhane; Guyatt, Gordon Journal: International journal of technology assessment in health care Issue: Volume 32:Number 3(2016) Page Start: 126 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. Familial hypercholesterolaemia patient support groups and advocacy: A multinational perspective. (October 2018) Authors: Payne, Jules; Williams, Simon; Maxwell, Diana; Pariente, M Teresa; Olivares, Raquel Arroyo; Janssen ten Haaf, Marlieke; Wong-Rieger, Durhane; Rieger, Fritz; Covato, Angela; Wong-Rieger, Hilary; Cermakova, Luba; Wilemon, Katherine Journal: Atherosclerosis Issue: Volume 277(2018) Page Start: 377 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. GENERATING HEALTH TECHNOLOGY ASSESSMENT EVIDENCE FOR RARE DISEASES. (19th November 2014) Authors: Facey, Karen; Granados, Alicia; Guyatt, Gordon; Kent, Alastair; Shah, Nilay; van der Wilt, Gert Jan; Wong-Rieger, Durhane Journal: International journal of technology assessment in health care Issue: Volume30:Number 4(2014:Oct.) Page Start: 416 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. OP100 How Health Technology Assessment Is Adapting To Orphan Drugs In Canada – Not!. (12th January 2018) Authors: Mills, Ferg; Wong-Rieger, Durhane Journal: International journal of technology assessment in health care Issue: Volume 33:Supplement 1(2017) Page Start: 45 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
5. OP100 How Health Technology Assessment Is Adapting To Orphan Drugs In Canada – Not!. (2017) Authors: Wong-Rieger, Durhane; Mills, Ferg Journal: International journal of technology assessment in health care Issue: Volume 33:Supplement 1(2017) Page Start: 45 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
6. Potential approaches for the pricing of cancer medicines across Europe to enhance the sustainability of healthcare systems and the implications. (4th July 2021) Authors: Godman, Brian; Hill, Andrew; Simoens, Steven; Selke, Gisbert; Selke Krulichová, Iva; Zampirolli Dias, Carolina; Martin, Antony P; Oortwijn, Wija; Timoney, Angela; Gustafsson, Lars L; Voncina, Luka; Kwon, Hye-Young; Gulbinovic, Jolanta; Gotham, Dzintars; Wale, Janet; Cristina Da Silva, Wânia; Boch... Journal: Expert review of pharmacoeconomics & outcomes research Issue: Volume 21:Number 4(2021) Page Start: 527 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
7. Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases. Issue 10 (19th December 2013) Authors: Kleiderman, Erika; Knoppers, Bartha Maria; Fernandez, Conrad V; Boycott, Kym M; Ouellette, Gail; Wong-Rieger, Durhane; Adam, Shelin; Richer, Julie; Avard, Denise Journal: Journal of medical ethics Issue: Volume 40:Issue 10(2014) Page Start: 691 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
8. Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort. (March 2017) Authors: Baron, Murray; Bartlett, Susan J.; Furst, Dan; Gottesman, Karen; van den Hoogen, Frank; Mouthon, Luc; Nielson, Warren R.; Poiraudeau, Serge; Riggs, Robert; Sauve, Maureen; Wigley, Fredrick; Boutron, Isabelle; Costa Maia, Angela; El-Baalbaki, Ghassan; Ells, Carolyn; van den Ende, Cornelia; Fligels... Journal: Body image Issue: Volume 20(2017) Page Start: 99 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
9. Validation of the Body Concealment Scale for Scleroderma (BCSS): Replication in the Scleroderma Patient-centered Intervention Network (SPIN) Cohort. (March 2017) Authors: Jewett, Lisa R.; Kwakkenbos, Linda; Carrier, Marie-Eve; Malcarne, Vanessa L.; Harcourt, Diana; Rumsey, Nichola; Mayes, Maureen D.; Assassi, Shervin; Körner, Annett; Fox, Rina S.; Gholizadeh, Shadi; Mills, Sarah D.; Fortune, Catherine; Thombs, Brett D.; Baron, Murray; Bartlett, Susan J.; Furst, Da... Journal: Body image Issue: Volume 20(2017) Page Start: 99 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗