1. Correction to: P047 The Crohn's Disease-Health Index (CD-HI): Development and Validation of a Novel, Disease-Specific Patient-Reported Outcome Measure for Clinical Trials. (9th May 2022) Authors: Seabury, Jamison; Weinstein, Jennifer; Rosero, Spencer; Varma, Anika; Wagner, Ellen; Zizzi, Christine; Dilek, Nuran; McDermott, Michael; Kaat, Aaron; Saubermann, Lawrence; Temple, Larissa; Rogoff, Scott; Heatwole, Chad Journal: American journal of gastroenterology Issue: Volume 117:Number 5(2022) Page Start: 817 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. DEVELOPMENT AND VALIDATION OF A PATIENT-REPORTED OUTCOME MEASURE FOR CROHN'S DISEASE: THE CROHN'S DISEASE-HEALTH INDEX (CD-HI), A FULLY VALIDATED TOOL TO BOLSTER CLINICAL TRIAL AND RESEARCH INFRASTRUCTURE. (26th January 2023) Authors: Rosero, Spencer; Varma, Anika; Seabury, Jamison; Weinstein, Jennifer; Wagner, Ellen; Zizzi, Christine; Engebrecht, Charlotte; Kaat, Aaron; Luebbe, Elizabeth; Dilek, Nuran; Heatwole, John; Saubermann, Lawrence; Temple, Larissa; Rogoff, Scott; Heatwole, Chad Journal: Inflammatory bowel diseases Issue: Volume 29(2023)Supplement 1 Page Start: S74 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. DEVELOPMENT AND VALIDATION OF THE CROHN'S DISEASE-HEALTH INDEX (CD-HI), A CLINICALLY-RELEVANT, DISEASE-SPECIFIC PATIENT-REPORTED OUTCOME MEASURE. (22nd January 2022) Authors: Seabury, Jamison; Weinstein, Jennifer; Rosero, Spencer; Varma, Anika; Wagner, Ellen; Zizzi, Christine; Dilek, Nuran; McDermott, Michael; Kaat, Aaron; Saubermann, Lawrence; Temple, Larissa; Rogoff, Scott; Heatwole, Chad; Rose, Zach Journal: Inflammatory bowel diseases Issue: Volume 28(2022)Supplement 1 Page Start: S73 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. Disease Burden in Children With Spinal Muscular Atrophy: Results From a Large Cross-Sectional Study. (February 2023) Authors: Rosero, Spencer; Weinstein, Jennifer; Seabury, Jamison; Zizzi, Christine; Wagner, Ellen; Varma, Anika; Heatwole, John; Alexandrou, Danae; MS, Nuran Dilek; Johnson, Brent A.; Heatwole, Chad Journal: Journal of child neurology Issue: Volume 38:Number 1/2(2023) Page Start: 52 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
5. Patient-Reported Impact of Symptoms in Crohn's Disease. (22nd December 2022) Authors: Varma, Anika; Weinstein, Jennifer; Seabury, Jamison; Rosero, Spencer; Wagner, Ellen; Zizzi, Christine; Luebbe, Elizabeth; Dilek, Nuran; McDermott, Michael; Heatwole, John; Saubermann, Lawrence; Temple, Larissa; Rogoff, Scott; Heatwole, Chad Journal: American journal of gastroenterology Issue: Volume 117:Number 12(2022) Page Start: 2033 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
6. Patient-Reported Impact of Symptoms in Crohn's Disease. (22nd December 2022) Authors: Varma, Anika; Weinstein, Jennifer; Seabury, Jamison; Rosero, Spencer; Wagner, Ellen; Zizzi, Christine; Luebbe, Elizabeth; Dilek, Nuran; McDermott, Michael; Heatwole, John; Saubermann, Lawrence; Temple, Larissa; Rogoff, Scott; Heatwole, Chad Journal: American journal of gastroenterology Issue: Volume 117:Number 12(2022) Page Start: 2033 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
7. Patient-Reported Impact of Symptoms in Friedreich Ataxia. (21st February 2023) Authors: Seabury, Jamison; Alexandrou, Danae; Dilek, Nuran; Cohen, Brittany; Heatwole, John; Larkindale, Jane; Lynch, David R.; Park, Courtney; Rosero, Spencer; Subramony, Sub H.; Varma, Anika; Wagner, Ellen; Walther, Susan; Weinstein, Jennifer; , McKenzie Wells; Zizzi, Christine; Heatwole, Chad Journal: Neurology Issue: Volume 100:Number 8(2023) Page Start: e808 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
8. RESULTS FROM A NATIONAL CROSS-SECTIONAL STUDY OF DISEASE BURDEN IN CROHN'S DISEASE. (21st January 2021) Authors: Seabury, Jamison; Zizzi, Christine; Weinstein, Jennifer; Wagner, Ellen; Rosero, Spencer; Dilek, Nuran; Kaat, Aaron; McDermott, Michael; Saubermann, Lawrence; Temple, Larissa; Rogoff, Scott; Heatwole, Chad Journal: Inflammatory bowel diseases Issue: Volume 27(2021)Supplement 1 Page Start: S13 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
9. The Alzheimer's Disease‐Health Indices (AD‐HI): Development of Two Novel Outcome Measures for Use in Clinical Trials. (20th December 2022) Authors: Seabury, Jamison; Arky, Abigail; Ayles, Megan; Dilek, Nuran; Hance, Margaret; Rosero, Spencer; Santos, Elizabeth; Weinstein, Jennifer; Varma, Anika; Heatwole, Chad Journal: Alzheimer's & dementia Issue: Volume 18(2022)Supplement 7 Page Start: n/a Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗