1. Fatigue predicts future reduced social participation, not reduced physical function or quality of life in people with systemic sclerosis. Issue 2 (June 2021) Authors: Murphy, Susan L; Whibley, Daniel; Kratz, Anna L; Poole, Janet L; Khanna, Dinesh Journal: Journal of scleroderma and related disorders Issue: Volume 6:Issue 2(2021) Page Start: 187 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. OP0162 HPR THE NEED FOR PERSONALIZED, NON-PHARMACOLOGICAL INTERVENTION PROGRAMMES IN AUTOIMMUNE CONNECTIVE TISSUE DISORDERS: RESULTS OF A EULAR-FUNDED SCOPING REVIEW WITH A NESTED, DESCRIPTIVE META-ANALYSIS. (June 2019) Authors: Ritschl, Valentin; Ferreira, Ricardo; Fernandes, Rúben; Santos, Eduardo; Fligelstone, Kim; Gaspar, Helena; Schraven, Linda; Ammerlaan, Judy; Stummvoll, Georg; Salvador, Maria Joao; Poole, Janet L; van den Ende, Cornelia; Boström, Carina; Stamm, Tanja Journal: Annals of the rheumatic diseases Issue: Volume 78(2019)Supplement 2 Page Start: 156 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. Reliability, validity, and responsiveness to change of the Patient-Reported Outcomes Measurement Information System self-efficacy for managing chronic conditions measure in systemic sclerosis. Issue 2 (June 2022) Authors: Murphy, Susan L; Berrocal, Veronica J; Poole, Janet L; Khanna, Dinesh Journal: Journal of scleroderma and related disorders Issue: Volume 7:Issue 2(2022) Page Start: 110 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. Suitability for e-health of non-pharmacological interventions in connective tissue diseases: scoping review with a descriptive analysis. Issue 2 (29th July 2021) Authors: Ritschl, Valentin; Ferreira, Ricardo J O; Santos, Eduardo José Ferreira; Fernandes, Rúben; Juutila, Essi; Mosor, Erika; Santos-Costa, Paulo; Fligelstone, Kim; Schraven, Linda; Stummvoll, Georg; Salvador, Maria; Poole, Janet L; van den Ende, Cornelia; Boström, Carina; Stamm, Tanja A Journal: RMD open Issue: Volume 7:Issue 2(2021) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
5. Systemic sclerosis manifestations and clinical outcomes in Hispanics/Latinos of the American Southwest. Issue 2 (June 2022) Authors: Nunez, Sharon E; Ariza-Hutchinson, Angie; Fields, Roderick A; Vondenberg, Jaime A; Patel, Rosemina A; Emil, N Suzanne; Muruganandam, Maheswari; Gibb, James I; Poole, Janet L; Sibbitt, Wilmer L Journal: Journal of scleroderma and related disorders Issue: Volume 7:Issue 2(2022) Page Start: 135 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
6. The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context. Issue 8 (7th August 2013) Authors: Kwakkenbos, Linda; Jewett, Lisa R; Baron, Murray; Bartlett, Susan J; Furst, Dan; Gottesman, Karen; Khanna, Dinesh; Malcarne, Vanessa L; Mayes, Maureen D; Mouthon, Luc; Poiraudeau, Serge; Sauve, Maureen; Nielson, Warren R; Poole, Janet L; Assassi, Shervin; Boutron, Isabelle; Ells, Carolyn; van den... Journal: BMJ open Issue: Volume 3:Issue 8(2013) Page Start: Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗