1. Quantifying the impact of symptomatic acute hepatic porphyria on well‐being via patient‐reported outcomes: Results from the Porphyria Worldwide Patient Experience Research (POWER) study. Issue 1 (18th October 2022) Authors: Dickey, Amy; Wheeden, Kristen; Lyon, Desiree; Burrell, Sue; Hegarty, Sean; Falchetto, Rocco; Williams, Edrin R.; Barman‐Aksözen, Jasmin; DeCongelio, Marc; Bulkley, Alison; Matos, Joana E.; Mnif, Tarek; Mora, Jordanna; Ko, John J.; Meninger, Stephen; Lombardelli, Stephen; Nance, Danielle Journal: JIMD reports Issue: Volume 64:Issue 1(2023) Page Start: 104 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. S1253 POWER (Porphyria Worldwide Patient Experience Research) Study: Impact of Acute Hepatic Porphyria Assessed Through an International Patient Survey. (October 2021) Authors: Dickey, Amy; Meninger, Stephen L.; Mora, Jordanna; LCGC, ; Ko, John J.; Le, May T.; Jain, Siddharth; DeCongelio, Marc; Bulkley, Alison; Matos, Joana E.; Mnif, Tarek; Wheeden, Kristen; Lyon, Desiree H.; Burrell, Sue; Hegarty, Sean; Falchetto, Rocco; Williams, Edrin R.; Barman-Aksözen, Jasmin; Nanc... Journal: American journal of gastroenterology Issue: Volume 116:Supplement(2021)ACG Annual Meeting Abstracts 1 Page Start: S577 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. S1342 The Impact of Acute Hepatic Porphyria on Mental Health: Results From the Porphyria Worldwide Patient Experience Research (POWER) Study. (October 2022) Authors: Nance, Danielle; Lyon, Desiree; Hegarty, Sean R.; Falchetto, Rocco; Barman-Aksözen, Jasmin; Matos, Joana E.; Lombardelli, Stephen; Dickey, Amy Other Names: Meninger Stephen L. presenter. Journal: American journal of gastroenterology Issue: Volume 117:Number 10(2022)supplement 10S Page Start: e966 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. S1372 Changes in Acute Hepatic Porphyria Health Impacts Since Initial Diagnosis: Results From the Porphyria Worldwide Patient Experience Research (POWER) Study. (October 2022) Authors: Nance, Danielle; Lyon, Desiree; Hegarty, Sean R.; Falchetto, Rocco; Barman-Aksözen, Jasmin; Mnif, Tarek; Lombardelli, Stephen; Dickey, Amy Other Names: Meninger Stephen L. presenter. Journal: American journal of gastroenterology Issue: Volume 117:Number 10(2022)supplement 10S Page Start: e986 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
5. Switching haemophilia products and inhibitor risk: a United States' perspective. (April 2015) Authors: Nance, Danielle; Rodgers, George M. Journal: European journal of haematology Issue: Volume 94:Number 4(2015:Apr.) Page Start: 283 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗