1. A methodology for a minimum data set for rare diseases to support national centers of excellence for healthcare and research. (18th July 2014) Authors: Choquet, Rémy; Maaroufi, Meriem; de Carrara, Albane; Messiaen, Claude; Luigi, Emmanuel; Landais, Paul Journal: Journal of the American Medical Informatics Association Issue: Volume 22:Number 1(2015:Jan.) Page Start: 76 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
2. A multicentre, randomised, double-blind, placebo-controlled trial with the interleukin-1 receptor antagonist anakinra in patients with systemic-onset juvenile idiopathic arthritis (ANAJIS trial). Issue 5 (20th December 2010) Authors: Quartier, Pierre; Allantaz, Florence; Cimaz, Rolando; Pillet, Pascal; Messiaen, Claude; Bardin, Christophe; Bossuyt, Xavier; Boutten, Anne; Bienvenu, Jacques; Duquesne, Agnes; Richer, Olivier; Chaussabel, Damien; Mogenet, Agnes; Banchereau, Jacques; Treluyer, Jean-Marc; Landais, Paul; Pascual, Vi... Journal: Annals of the rheumatic diseases Issue: Volume 70:Issue 5(2011) Page Start: 747 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
3. Prognostic Factors From an Epidemiologic Evaluation of Fibrous Dysplasia of Bone in a Modern Cohort: The FRANCEDYS Study. (13th July 2016) Authors: Benhamou, Johanna; Gensburger, Deborah; Messiaen, Claude; Chapurlat, Roland Journal: Journal of bone and mineral research Issue: Volume 31:Number 12(2016:Dec.) Page Start: 2167 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗
4. The ongoing French BaMaRa-BNDMR cohort: implementation and deployment of a nationwide information system on rare disease. (6th November 2021) Authors: Jannot, Anne-Sophie; Messiaen, Claude; Khatim, Ahlem; Pichon, Thibaut; Sandrin, Arnaud Journal: Journal of the American Medical Informatics Association Issue: Volume 29:Number 3(2022) Page Start: 553 Record Type: Journal Article View Content: Available online (eLD content is only available in our Reading Rooms) ↗