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2. Incremental cost per quality-adjusted life year gained? The need for alternative methods to evaluate medical interventions for ultra-rare disorders. (July 2014)

4. Determining the value of medical technologies to treat ultra-rare disorders: a consensus statement. Issue 1 (1st January 2016)

6. Acceptance by laypersons and medical professionals of the personalized eHealth platform, eHealthMonitor. (3rd July 2017)

7. 8th European Conference on Rare Diseases & Orphan Products (ECRD 2016). Issue 1 (November 2016)